I have lost 6 family members to ALS . My grandpa,his sister, and father .my uncle , my mom , & my little brother , he was only 40 when it hit . I had generic testing done over 10 yrs ago . My test came back , I thought I was only doing it for family research . OMG , I am a carrier of the fig4 , and positive on the C9 with 44 repeats . I felt death , was speechless !