Submitted by: Kara G. on Sun, 04/30/2023

Chris - We are sorry to hear about your concern you may have symptoms of ALS. Please look up Brian Wallach. He has a documentary out “No Ordinary Campaign” He really is the new face of ALS-(diagnosed at age 37) and has done more for ALS in 6 years than anyone I’ve read about; using his political background to push research funding through congress. He helped started I am ALS.org (awesome modern fresh website with so much info presented in a strong, user friendly way) and recently helped launch a telemedicine company Synapticure…their care team is phenomenal and are helping us navigate medicines, supplements & research trials. . We have seen 4 neurologists thus far. It’s important to get multiple opinions. Also, Steve Gleason teamgleason.org for equipment and voice banking.
Praying for you as you navigate the days ahead…

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