I have lost my step-grandfather, uncle and father to ALS. ALS has taken many years, opportunities and memories from me and my family. My step father lost his battle with ALS just 5 years after his older brother.
There was a “new drug” available but not approved in Canada and I feel that my step father would have had a longer and better life had he had been able to access the drug.
There has to be more approvals and studies into preventative medicine for ALS. Without that, it’s devastating.