Submitted by: Kathy H. on Thu, 03/03/2022

Your article really resonated with me tonight. I spent most of today dealing with incompetence and lack of awareness. Actually, it is more accurate to say lack of basic human kindness. I finally said to the young man who was trying to justify that my husband’s power wheelchair had still not been ordered five months after his ALS clinic put in the order, “ if this was your wife struggling to breath….if you were watching her dying before your eyes…..losing more and more independence each day…maybe then you would care enough to realize ALS families don’t count our lives in months or years but hours and minutes”….Thank you for fighting the war against the discrimination. While you fight the war, we the families, will continue to fight our own day to day battles to give our loved ones with ALS as much comfort and independence as possible.

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