Submitted by: MICHIEL H. on Thu, 03/03/2022

ALS is a very hard disease to deal with in that the diagnosis is an immediate death sentence to the person who is diagnosed. There is nothing that can be done to change that. And nothing on the horizon to change the situation. 153 years with no progress toward a cure or slowing of the disease.
I am the full time caregiver to my wife of 34 years who has had the disease for 9 years. She has been bedridden for the past three and a half years now. I am tired but keep working at giving her the best care that I can. Hope was thrown out the window the day she was diagnosed. I cannot sugar coat the facts and if you don’t want to hear then don’t listen.

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