Submitted by: Sue Y. on Thu, 02/03/2022

By combining the input of the FDA and ICER my husband is being condemned to sever disability and death long before either needs or needed to happen.
Withholding new drugs from people with ALS is nothing short of murder. I’m sorry none the people in these agencies have experienced this disease or had a loved one who has. Their response would be much more concerned with getting new treatment and drugs to these patients expeditiously if it were more personal.

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