Submitted by: V B. on Thu, 10/07/2021

I agree with all points made in this article. My husband was one of those who life span from diagnosis was only 2 years. We covered the additional cost of unlocking the communication device and the $2000 for the ‘lift’ feature of his power chair. He could not get into a standing position without this feature… and I, as his sole caregiver, could not lift him. And, we experienced the same issue with physical therapy… he could not, would not get better and the medical agency refused to treat him further.
We do need to tell CMS that one size DOES NOT fit all…. and ALS patients do not have the luxury of time.

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