ALS Assocation

I live with ALS every day, how can you deny me a longer life. I want to see my child graduate from high school-college. Start a life, have kids (my grandchildren) for you to deny me and her of her mother is unthinkable. Do you have any idea what it cost to live with ALS, the medical bills, the cost of equipment, to get turned down every step of the way because you followed all the rules but you now have to give up everything you work for because you have to much according to the government and the state. But you don’t have enough to support your family. You can’t walk, talk, lift your hands and arms to even feed yourself. You can’t go to the bathroom, let alone wipe your own ass. You can’t cook, garden, talk to your child, your husband, take your daughter anywhere. How dare you deny me a little more time with my family, shame on you.