Submitted by: Kimi L. on Fri, 12/15/2023

I have been going to an ALS CLINIC since Jan 2023. I applied for SS disability in May 2023. I was informed it was approved but I would have to do the 5 mo waiting period. I did an appeal/ reconsideration. I received a letter back informing me they based decision not on ALS, but on the condition of neurological disorders other than ALS. I sent in all my clinic visits that state I have ALS. Today I called for an update. I was told they denied my request for waiving the 5 month waiting period. Has anyone else had this happen. Is it happening and people aren't aware?
The person I spoke to said I can appeal again. I am someone who has been slow to decline. I'm not sure if that made a difference. Any suggestions ???

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