Submitted by: Lynne H. on Tue, 08/01/2023

I'm 58 years old, and last summer was diagnosed with GAD-65 positive Stiff Person Syndrome. I've had severe foot drop in my right foot for 4 years. It's just started in my left foot. I'm getting weaker in my arms, and also have constant tongue fasciculations. Now they're questioning my original diagnosis, and are about to test me for ALS. Recently, they realized I have severe damage to my lower lumbar. Side by side, the EMG and MRIs confirm the damage is probably causing my right foot drop. I can still walk with a rollator. I can drive. I can clean house and do most inside chores with time. So, my question is how can they tell the difference between ALS and Stiff Person Syndrome with all these similarities? They refuse to do surgery on my lower spine because they think I could have breathing issues if I have ALS. My sats stay 97-98% consistently. They even mentioned I could have both diseases? Is that even possible, and over a year after my SPS diagnosis, still be functioning this well?

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