I felt like you were describing my mother, and my feelings. I just lost my mother from onset-bulbar and I’m devastated. I’m also mad at this horrid disease. I want it gone, cured, I want no one to suffer like she did. How it stole everything from her. But I also am thankful I got to take care of her all the way to the end, just like she did in my beginning. I will miss her hugs, kisses, smell, head rubs, advice, voice, scoldings, laugh, love, and most of all - HER.