University of Iowa Health Care in Iowa City, Iowa provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
Telehealth has been an important element in U.S. health care for decades, but the COVID-19 public health emergency has put a spotlight on the need to maintain and expand access to telehealth to ensure everyone can receive appropriate care when and where they need it.
We spoke with Dr. Melinda Kavanaugh, clinical social worker and associate professor at the University of Wisconsin-Milwaukee, to understand more about young caregivers and the potential harms caused by the lack of quality of sleep they receive and what can we do about it.
Home modification options and safety are key factors that support quality of life during a journey with ALS. Please contact your local care services staff for referral to this virtual assessment program.
The ALS Care Clinic at Crestwood Medical Center in Huntsville, Alabama provides focused support for people living with ALS, allowing them to receive care from specialized medical professionals during a single visit.
These 2-year awards with a maximum budget of $500,000 seek to support the development and/or testing of interventions intended to improve quality of life; make ALS care safer, of higher quality, more accessible, more equitable, and more affordable; reduce complications; and enhance service delivery at the point of care.
Today, we are happy to be joined by ALS clinician scientist Dr. Peter Creigh from the University of Rochester in Rochester, N.Y., the recipient of the 2018 Clinician Research Training Fellowship in ALS Research. The fellowship is given by The ALS Association, in partnership with the American Academy of Neurology (AAN).
The ALS Association’s nationwide network of local care teams work tirelessly with families to provide education, support and resources to help. One of those care team members is Melissa Enfinger, director of care services in Alabama, who works very closely with the Woody family in Auburn.
The Maurer-Heinsen Home Access Program is a compassionate and practical initiative dedicated to enhancing the lives of individuals living with ALS. This program was generously funded by the Tim Maurer and Petra Heinsen family and is aptly named in their honor.
The Maurer-Heinsen Home Access Program is a compassionate and practical initiative dedicated to enhancing the lives of individuals living with ALS. This program was generously funded by the Tim Maurer and Petra Heinsen family and is aptly named in their honor.