COVID-19 Vaccines Info
COVID-19 Vaccines Info

Information About COVID-19 Vaccines for People with ALS

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COVID vaccine

The ALS Association continues to follow developments closely as new COVID-19 vaccines are approved and corresponding distribution plans are launched.  

We have created this web page as a hub for information updates and resources that will be updated regularly. We hope this information can inform conversations families with ALS should have with their medical teams. This is in regard to both the safety and efficacy of the vaccines and the earliest possible availability of vaccine for people living with the disease, their caregivers, and others in their household. 

Latest News

  • On September 17, 2021, a government advisory panel overwhelmingly rejected a plan to give Pfizer COVID-19 booster shots across the board, and instead endorsed the extra vaccine dose only for those who are 65 or older or run a high risk of severe disease. Learn more.
  • On August 23, 2021, the U.S. Food and Drug Administration fully approved the first COVID-19 vaccine. Learn more.
  • On August 18, 2021, the CDC released a statement that booster shot will be needed to maximize vaccine-induced protection and prolong its durability. Learn more.
  • As of April 19, 2021, all adults in every U.S. state, Washington, D.C., and Puerto Rico are eligible for a COVID-19 vaccine. Learn more.
  • On April 13, 2021, federal health agencies recommended that states immediately pause use of Johnson & Johnson’s single-dose vaccine after six recipients in the United States developed a rare disorder involving blood clots within about two weeks of vaccination. “We are recommending a pause in the use of this vaccine out of an abundance of caution,” Dr. Peter Marks, director of the Food and Drug Administration’s Center for Biologics Evaluation and Research, and Dr. Anne Schuchat, principal deputy director of the C.D.C., said in a joint statement. “Right now, these adverse events appear to be extremely rare.” Learn more.
  • On February 27, 2021, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) for the third vaccine for the prevention of COVID-19. The EUA allows the Johnson & Johnson COVID-19 vaccine to be distributed in the U.S for use in individuals 18 years of age and older. The Johnson & Johnson COVID-19 vaccine is administered as a single dose. Read more.
  • Visit this page to learn more about each state's vaccine distribution plan.
  • February 4, 2021: New data from U.S. Department of Veterans Affairs shows veterans with ALS are three times more likely to die of COVID-19 than veterans without ALS. The Centers For Disease Control (CDC) and governors must make the vaccine available to people with ALS and caregivers as soon as possible. We have sent a letter to the CDC requesting this update in vaccine access and our chapters across the country are delivering this message to governors now.
  • January, 2021: The ALS Association hosted a COVID-19 vaccine webinar for the ALS community, with panelists Dr. Lou Libby, Dr. Richard Bedlack, Dr. Cherise Rohr-Allegrini, Dr. Urvai Desai and Dr. Marinella Galea, moderated by ALS Association Board of Trustees member Dr. Ken Menkhaus. The webinar addressed vaccine distribution and infection control issues that are specific to the concerns and interests of the ALS community. Watch here.
  • December 18, 2020: The Moderna vaccine has been approved for emergency authorization and distribution is anticipated to begin immediately. You can read more about it here.

Updated: August 23, 2021

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COVID-19 Vaccines Info