The ALS Foundation for Life: The Future of a 20+ Year Legacy

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The ALS Foundation for Life (the Foundation) spent the last twenty years improving the quality of life for those persons battling Amyotrophic Lateral Sclerosis (ALS) on a daily basis across the United States. In 2001, Frank Carlson, diagnosed with ALS at age 27, founded the organization with the determination to help ease the incredible financial burden and maintain the independence and dignity of others with ALS. Frank lost his personal battle with ALS in 2004, however, the Foundation continues his mission. Staffed by volunteers, the Foundation has helped countless persons with ALS and their families by providing financial assistance, grants for home modifications, medical equipment, and supplies not covered by insurance.

In 2021, the Foundation decided to pass Frank’s legacy to The ALS Association Massachusetts Chapter. Our Chapter is honored to continue the Foundation’s work and proudly serve Frank’s memory. Our Chapter will continue to use the Foundation’s funding, current and future, to meet its mission and provide the same financial assistance to persons with ALS and their families.

Together, the Foundation and The ALS Association Massachusetts Chapter thank everyone supporting our mission to ease ALS’s financial burden on families.  Together, we can make a difference and we will do whatever it takes to win the fight to end ALS.

Donate to Help Continue The ALS Foundation For Life's Mission

Frank Carlson, Founder of The ALS Foundation for Life

Message From The Founder

My Story

Having been diagnosed with Amyotrophic Lateral Sclerosis in March of 2001, I am acutely aware of the physical, emotional, and financial burdens that accompany this disease. I have struggled with the losses of such mundane abilities as walking, lifting my arms, and signing my own name. I have stressed myself in accepting the harsh realities of battling a chronic, progressive, and terminal illness. I feel the strain of the fiscal responsibilities bestowed upon my loved ones and myself as we try to keep ahead of the ever-changing degeneration and maintain a healthy quality of life.

Most other organizations, alongside the government and medical professionals, are focusing the majority of their diligent efforts on finding a cure and prevention for ALS.

It is the mission of the ALS Foundation for Life to improve the quality of life for those with Amyotrophic Lateral Sclerosis in our community. We realize that it is difficult to know what to do or where to turn as symptoms develop. The progress occurs without warning and patients are often caught unprepared to manage new adjustments.

With your support we can increase public awareness and aid in providing assistive equipment, technology, and financial aid for medical expenses and home modifications, as well as serve as a guide in finding and acquiring these products and services.

Thank you,

Frank Carlson
Founder, ALS Foundation for Life

Contact Information

The ALS Association, Massachusetts Chapter
200 Friberg Parkway, Suite 1000
Westborough, MA 01581


[email protected]


You have been directed to The ALS Association Massachusetts Chapter’s webpage ( automatically from the ALS Foundation for Life’s webpage. The ALS Association Massachusetts Chapter maintains this landing page as a service to those who have contributed to the Foundation in the past or otherwise come across its website while searching for more information about ALS. The Massachusetts Chapter shall continue to maintain this page to honor the legacy the Foundation’s two decades working to support persons with ALS and their families.

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