Hope and Help Symposium
Hope and Help Symposium
Building Hope Through Help
2021 Hope and Help Symposium

Our 8th Annual Hope and Help Symposium was hosted virtually on Saturday, September 18, 2021. Each live presentation was recorded for anybody who missed them. If you have any questions regarding the 2021 Symposium, please contact your Regional Program Manager.

2021 Hope and Help Symposium Presentations
  • Presenting Sponsor - Mitsubishi Tanabe Pharma America
  • Welcome/Opening Remarks
    - Ray Carson, President/CEO at The ALS Association Florida Chapter
  • AAC Solutions for Individuals Living with ALS
    Wendy Olsen, PhD, CCC-SLP, Assistive Technology Manager at The ALS Association Florida Chapter
  • Non-invasive Ventilation
    Michael Reeser, BS, RRT, Millennium Respiratory Services
  • What's Wrong with a Little Weight Loss?
    Jeanne Struve, RD/N, LDN, Outpatient Dietitian/Nutritionist at Lee Health
  • Exercise that is Good: Exercise Smarter Not Harder
    Matthew J. Caraher PT, DPT, NCS, c/NDT, CSCS, Physical Therapist at the University of Miami
  • Swallowing and ALS
    Nicole Herndon, MS, CCC-SLP, Speech-language Pathologist at UF Health Rehab Center at the Norman Fixel Institute for Neurological Diseases
  • Equipment Needs and Things to Think About
    Jennifer Barrow, OTR/L, ATP, Occupational Therapist at UF Health Jacksonville
  • Co-Sponsor - Trulieve
    - Skyler Hunt, Community Outreach Liaison at Trulieve
  • Equipment Loan Program and the Custom Power Wheelchair Process - Ability Medical and Numotion
    Jarrod Rowles, ATP/SMS, CRTS, Numotion and Scott Leikala, ATP, CRTS, Director of Clinical Services at Ability Medical
  • The Power of Advocacy and the CDC National ALS Registry
    Jo-Ann Clynch, MBA, Manager of Florida Power & Light Company/NextEra Energy and Song Xue, Public Health Analyst at Centers for Disease Control and Prevention (CDC)
  • Losses with ALS
    - Eva Pagán-Hill, LMHC
  • 2021 Award Presentation 
  • Statewide Medicaid Managed Care - Long Term Care Program
    - Chrysti Reichert, Lead Medicaid Waiver Specialist at Area Agency on Aging of Pasco-Pinellas
  • Community Sponsor - Amylyx
    Justin Klee and Joshua Cohen, Co-founders/Co-CEOS of Amylyx
  • Get the Care You Want
    - Jamie Buller, LCSW, ACHP-SW, Director of Advance Care Planning at Community Hospice & Palliative Care
  • ALS 101: Newly Diagnosed Patients
    - Camila Arizaga, MSW, Regional Program Manager, Miami-Dade at The ALS Association Florida Chapter
  • Financial and Estate Planning 
    - Brian D. Chappell, CRPS®, Vice President of Wealth Management at UBS
    *Per the wishes of UBS, this session was not recorded. 
  • Quality of Life & Mindfulness
    - Molly Kilpatrick, MD, Associate Program Director Hospice & Palliative Medicine Fellowship at Mayo Clinic Jacksonville
  • The Outer Limits: Updates and New Directions
    - Richard Bedlack, MD, PhD, MS, Professor of Neurology at Duke University, Director of The ALS Association Certified Treatment Center of Excellence at Duke Health
  • Ask the Docs about Clinical Care
    - Volkan Granit, MD, MSc, Medical Director of the Kessenich Family ALS Clinic at the University of Miami
    - Amparo Gutierrez, MD, FAANS, ALS Clinic Director at Orlando Health
    - Nivedita Jerath, MD, MS, Medical Director at AdventHealth, Neuromuscular Medicine
    - Bryant Le Vuong, DO, Medical Director of the ALS Clinic at Lee Health
    Michael Pulley, MD, PhD, Director of UF Health Jacksonville Multidisciplinary ALS Center of Excellence
  • Ask the Docs about Research
    - Tuan Vu, MD, Director of the ALS Center of Excellence at the Morsani Advanced Health Center/University of South Florida
    - Clifton Gooch, MD, Professor & Chair of the Neurology Department at USF Health, Morsani College of Medicine
    - Michael Benatar, MD, PhD, Professor of Neurology and of Public Health Sciences, Chief of Neuromuscular Division and Executive Director of the Kessenich Family ALS Clinic at the University of Miami
    - Björn Oskarsson, MD, FAAN, Associate Professor of Neurology, Director of the ALS Center of Excellence at Mayo Clinic Jacksonville
    - Eduardo Locatelli, MD, MPH, Co-Director of the ALS Center of Excellence at Holy Cross Health/Phil Smith Neuroscience Institute
    - James Wymer, MD, PhD, CPI, FAAN, Professor of Neurology, Chief of Neuromuscular Division at the University of Florida - Gainesville
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Hope and Help Symposium