Chapter Highlights

Image
Hampton Graham, ALS of Florida Board Chair (left) and Ray Carson, ALS of Florida CEO (right) present Molly Mahoney with the Ambassador of Hope award.
The ALS Association Florida Chapter Shines A Light On This Year's Ambassador of Hope Honorees

 

It was an honor and privilege to host our 9th Annual Hope & Help Symposium this year at the Rosen Shingle Creek in Orlando. We were so glad to be able to gather in person for the symposium for the first time since 2019. The symposium comprised informative demonstrations and sessions for individuals living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. Over the next few weeks, we will share highlights from our expert speakers and full access to the symposium presentations for those who could not attend this year's in-person event. 

Highlighting Hope

Our symposium is titled Hope and Help for a good reason. It is the dedication of our staff, volunteers, community partners, individuals living with ALS spreading awareness, our supporters who help advocate for medical research, and our clients and their caregivers who, even amid an ALS diagnosis, continue to find ways to help the ALS community. 

Each year our awards ceremony honors individuals or organizations who encompass and embody the meaning of hope. Our Ambassador of Hope award was created several years ago to recognize volunteers, people living with ALS, caregivers, or advocates who have made outstanding contributions to furthering the ALS of Florida Chapter’s work. Over the years, nearly 50 people and organizations have received this award.

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient John Cannistra smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Ambassador of Hope Award to
John Cannistra (center).  

2022 Ambassador of Hope Honoree: John Cannistra

John Cannistra, Ambassador of Hope honoree, has been one of our most dedicated and involved volunteers over the last 10 years at the ALS Florida Chapter. He lost his beloved wife, Kathy, ten years ago to ALS. Since then, he has honored her memory by serving families in Florida who are battling ALS.

John was elected to the Florida Chapter Board of Directors in 2011 and has played a role on every committee during his tenure, including serving as Chairman of the Board in FY2018-19 and FY2019-2020, helping set the stage for the rapid growth of Florida Chapter programs and services. In his current role as Immediate Past Chairman, he is an active member of the Board’s executive and finance committees. He also represents the Florida Chapter on the national Board of Representatives.

His board term is set to expire at the end of this year. Recently, the Florida Chapter board has asked him to serve as an honorary life member of the board, only the second individual to be named to that distinction in the chapter’s history.

Congratulations, John!

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Molly Mahoney smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left) and
CEO, Ray Carson, present Molly Mahoney
(center) with the Ambassador of
Hope Award.

2022 Ambassador of Hope Honoree: Molly Mahoney

Molly Mahoney, Ambassador of Hope award honoree, is a native of New York City but currently resides in Orlando, Florida. Molly was diagnosed with ALS in October 2019, only a few months before the COVID-19 pandemic forced many businesses, ALS clinics, and the Florida Chapter to virtual platforms. Despite the challenges ALS and the COVID-19 shutdown placed in her way, she has always done what she could to assist others with ALS in Orlando.

Molly has worked tirelessly to raise awareness about ALS through her active participation in the Orlando Walk to Defeat ALS and the Orlando CEO Soak. She remains a frequent and active participant in the Chapter’s Central Florida support group, and she is admired for her positive attitude as well as her willingness to offer advice to others who are newer to their diagnosis.

Congratulations, Molly!

2022 Patti Palmer Award Winner: Christine Bright

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Christine Bright smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Patti Palmer Award to Christine
Bright (center).  

The Patti Palmer Award was created in memory of the ALS Florida Chapter’s first Executive Director, Patti Palmer. Patti worked with the ALS Florida Chapter from 1987 up until August 2019. "I had the opportunity to work with her for only a few months and learned quickly that in many ways she represented the very soul of the Florida Chapter staff team," said Ray Carson, CEO of ALS Florida Chapter. 

The Patti Palmer Award is presented annually to a current or former staff member of The ALS Association who has exemplified excellence in helping to move forward our organizational mission.

In 1998, Christine was the ALS of Florida Chapter's first Care Services Director. Since the Chapter didn’t have a staff of care service professionals like we do today, she formed partnerships with outside agencies and trained their staff to represent the Chapter and deliver our programs. She led the care services department for over a decade and slowly assembled staff to help implement her vision. Christine is largely responsible for building the foundation for today’s programs and services. 

“I can’t begin to count all I have learned from her – she was a true role model. Patients came first in everything she did and every decision she made.” - staff member nomination.

Congratulations, Christine!

Thank You

We want to extend a big thank you to the medical professionals, caregivers, ALS community and our gracious sponsors and vendors for supporting this event. Without you, this event would not be possible. 

To view our full symposium album please visit our Facebook page. If you would like to view the symposium presentations and awards ceremony, please bookmark this blog post and check back soon for a link to the video recording. 

We are already looking forward to seeing everyone next year! 

 

 

 

 

 

 

 

 

The CEO Soak is a next-level, executive version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. Executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families.

Are you/do you know a CEO/President/Manager who would love to get soaked for ALS? Get them signed up today!:

────────────────────────────────────────────────
Image
HHS e-News

This year's Hope and Help Symposium is back in person at the Rosen Shingle Creek in Orlando! Join us on October 8th from 8:00 AM to 5:30 PM for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. 

Tickets are free, but please RSVP here so we can get a headcount! Guests can now book rooms at the Rosen Shingle Creek for a special rate from Friday, October 7th to Sunday, October 9th! Call 1-866-996-6338 and mention the Hope and Help Symposium or use the special link by September 6th to reserve your room.

────────────────────────────────────────────────
Image
Research e-News

Florida is leading the country for the amount of clinical trials listed on clinicaltrials.gov. No other state has as many recruiting ALS projects; several clinics in the state are searching for better treatments and a potential cure. This gives people with ALS plenty of opportunities to make a difference in research - join a trial today! 

────────────────────────────────────────────────
Image
2022 Calendar e-Newsletter Icon

CAREGIVERS: Order calendars for 2022 that offer daily inspiration and support.

Calendars cost $5.99; Use promo code ALSAFL for every purchase so that funds are donated to The ALS Association Florida Chapter. TO ORDER: www.caregiverscomfort.com/products
Learn more.

────────────────────────────────────────────────
Image
Support Groups

ALS Support Groups

Dealing with ALS is physically, emotionally and financially devastating. ALS Support Groups provide a caring, supportive, and open environment for people to gather, connect, and talk with one another. These groups are open to people living with ALS, their families, caregivers and friends. They provide everyone with opportunities to establish a network of valuable resources and sustained support. Our Chapter Regional Program Managers facilitate each meeting and will have speakers on relevant topics combined with time for attendees to share information and provide feedback to one another. 

LEARN MORE ABOUT OUR SUPPORT GROUPS!

────────────────────────────────────────────────
Image
Chapter Events - Small

The ALS Association Florida Chapter Events

Our Chapter and third-party hosted events provide opportunities to #ChallengeALS: from raising awareness of ALS, to fundraising for our Chapter to support our services, these opportunities allow us to gather, connect, and fight ALS together.

LEARN MORE ABOUT OUR CHAPTER EVENTS!

────────────────────────────────────────────────
Image
Durable Medical Equipment in Store

Donate Equipment to The ALS Association Florida Chapter!

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. The Program offers temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval.

For equipment donations, please contact 888.257.1717 ext. 113.

We will provide an acknowledgment letter to each donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical and NuMotion.

Image
Ability Medical Logo
Image
Numotion Logo

 

Ability Medical and Numotion donate their time and services to help us fulfill our Equipment Loan Program, providing temporary loaner equipment to Florida residents in need with a verified diagnosis of ALS. For more information about our Program, click here

────────────────────────────────────────────────
Image
Ways to Give Back Header

Fun Ways to Fight ALS

There are several ways to fight ALS through FUNdraising efforts including (but not limited to): shopping, playing games, live streaming, exercising, and SO MUCH MORE. 

LEARN HOW TO PARTICIPATE HERE!

────────────────────────────────────────────────
Image
Financial Flower

Donate Today!

Your gift will help The ALS Association Florida Chapter support research to find a cure for ALS and provide much-needed services to people living with ALS and their families. By making your gift today, you will help sustain hope in thousands of people affected by ALS. To make an online donation, please click on the button below.

DONATE NOW!

────────────────────────────────────────────────

Connect With Us On Social Media

To get the latest updates regarding what is happening in Florida to care for, treat and fight ALS, make sure to follow us on all of our social media channels:

Image
Facebook Icon

Visit our Facebook

Image
Twitter Icon

Visit our Twitter

Image
Instagram Logo

Visit our Instagram

Image
YouTube Logo

Visit our YouTube

Image
LinkedIn Logo

Visit our LinkedIn

It was an honor and privilege to host our 9th Annual Hope & Help Symposium this year at the Rosen Shingle Creek in Orlando. We were so glad to be able to gather in person for the symposium for the first time since 2019. The symposium comprised informative demonstrations and sessions for individuals living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. Over the next few weeks, we will share highlights from our expert speakers and full access to the symposium presentations for those who could not attend this year's in-person event. 

Highlighting Hope

Our symposium is titled Hope and Help for a good reason. It is the dedication of our staff, volunteers, community partners, individuals living with ALS spreading awareness, our supporters who help advocate for medical research, and our clients and their caregivers who, even amid an ALS diagnosis, continue to find ways to help the ALS community. 

Each year our awards ceremony honors individuals or organizations who encompass and embody the meaning of hope. Our Ambassador of Hope award was created several years ago to recognize volunteers, people living with ALS, caregivers, or advocates who have made outstanding contributions to furthering the ALS of Florida Chapter’s work. Over the years, nearly 50 people and organizations have received this award.

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient John Cannistra smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Ambassador of Hope Award to
John Cannistra (center).  

2022 Ambassador of Hope Honoree: John Cannistra

John Cannistra, Ambassador of Hope honoree, has been one of our most dedicated and involved volunteers over the last 10 years at the ALS Florida Chapter. He lost his beloved wife, Kathy, ten years ago to ALS. Since then, he has honored her memory by serving families in Florida who are battling ALS.

John was elected to the Florida Chapter Board of Directors in 2011 and has played a role on every committee during his tenure, including serving as Chairman of the Board in FY2018-19 and FY2019-2020, helping set the stage for the rapid growth of Florida Chapter programs and services. In his current role as Immediate Past Chairman, he is an active member of the Board’s executive and finance committees. He also represents the Florida Chapter on the national Board of Representatives.

His board term is set to expire at the end of this year. Recently, the Florida Chapter board has asked him to serve as an honorary life member of the board, only the second individual to be named to that distinction in the chapter’s history.

Congratulations, John!

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Molly Mahoney smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left) and
CEO, Ray Carson, present Molly Mahoney
(center) with the Ambassador of
Hope Award.

2022 Ambassador of Hope Honoree: Molly Mahoney

Molly Mahoney, Ambassador of Hope award honoree, is a native of New York City but currently resides in Orlando, Florida. Molly was diagnosed with ALS in October 2019, only a few months before the COVID-19 pandemic forced many businesses, ALS clinics, and the Florida Chapter to virtual platforms. Despite the challenges ALS and the COVID-19 shutdown placed in her way, she has always done what she could to assist others with ALS in Orlando.

Molly has worked tirelessly to raise awareness about ALS through her active participation in the Orlando Walk to Defeat ALS and the Orlando CEO Soak. She remains a frequent and active participant in the Chapter’s Central Florida support group, and she is admired for her positive attitude as well as her willingness to offer advice to others who are newer to their diagnosis.

Congratulations, Molly!

2022 Patti Palmer Award Winner: Christine Bright

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Christine Bright smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Patti Palmer Award to Christine
Bright (center).  

The Patti Palmer Award was created in memory of the ALS Florida Chapter’s first Executive Director, Patti Palmer. Patti worked with the ALS Florida Chapter from 1987 up until August 2019. "I had the opportunity to work with her for only a few months and learned quickly that in many ways she represented the very soul of the Florida Chapter staff team," said Ray Carson, CEO of ALS Florida Chapter. 

The Patti Palmer Award is presented annually to a current or former staff member of The ALS Association who has exemplified excellence in helping to move forward our organizational mission.

In 1998, Christine was the ALS of Florida Chapter's first Care Services Director. Since the Chapter didn’t have a staff of care service professionals like we do today, she formed partnerships with outside agencies and trained their staff to represent the Chapter and deliver our programs. She led the care services department for over a decade and slowly assembled staff to help implement her vision. Christine is largely responsible for building the foundation for today’s programs and services. 

“I can’t begin to count all I have learned from her – she was a true role model. Patients came first in everything she did and every decision she made.” - staff member nomination.

Congratulations, Christine!

Thank You

We want to extend a big thank you to the medical professionals, caregivers, ALS community and our gracious sponsors and vendors for supporting this event. Without you, this event would not be possible. 

To view our full symposium album please visit our Facebook page. If you would like to view the symposium presentations and awards ceremony, please bookmark this blog post and check back soon for a link to the video recording. 

We are already looking forward to seeing everyone next year! 

The ALS Association Florida Chapter Shines A Light On This Year's Ambassador of Hope Honorees

It was an honor and privilege to host our 9th Annual Hope & Help Symposium this year at the Rosen Shingle Creek in Orlando. We were so glad to be able to gather in person for the symposium for the first time since 2019. The symposium comprised informative demonstrations and sessions for individuals living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. Over the next few weeks, we will share highlights from our expert speakers and full access to the symposium presentations for those who could not attend this year's in-person event. 

Highlighting Hope

Our symposium is titled Hope and Help for a good reason. It is the dedication of our staff, volunteers, community partners, individuals living with ALS spreading awareness, our supporters who help advocate for medical research, and our clients and their caregivers who, even amid an ALS diagnosis, continue to find ways to help the ALS community. 

Each year our awards ceremony honors individuals or organizations who encompass and embody the meaning of hope. Our Ambassador of Hope award was created several years ago to recognize volunteers, people living with ALS, caregivers, or advocates who have made outstanding contributions to furthering the ALS of Florida Chapter’s work. Over the years, nearly 50 people and organizations have received this award.

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient John Cannistra smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Ambassador of Hope Award to
John Cannistra (center).  

2022 Ambassador of Hope Honoree: John Cannistra

John Cannistra, Ambassador of Hope honoree, has been one of our most dedicated and involved volunteers over the last 10 years at the ALS Florida Chapter. He lost his beloved wife, Kathy, ten years ago to ALS. Since then, he has honored her memory by serving families in Florida who are battling ALS.

John was elected to the Florida Chapter Board of Directors in 2011 and has played a role on every committee during his tenure, including serving as Chairman of the Board in FY2018-19 and FY2019-2020, helping set the stage for the rapid growth of Florida Chapter programs and services. In his current role as Immediate Past Chairman, he is an active member of the Board’s executive and finance committees. He also represents the Florida Chapter on the national Board of Representatives.

His board term is set to expire at the end of this year. Recently, the Florida Chapter board has asked him to serve as an honorary life member of the board, only the second individual to be named to that distinction in the chapter’s history.

Congratulations, John!

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Molly Mahoney smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left) and
CEO, Ray Carson, present Molly Mahoney
(center) with the Ambassador of
Hope Award.

2022 Ambassador of Hope Honoree: Molly Mahoney

Molly Mahoney, Ambassador of Hope award honoree, is a native of New York City but currently resides in Orlando, Florida. Molly was diagnosed with ALS in October 2019, only a few months before the COVID-19 pandemic forced many businesses, ALS clinics, and the Florida Chapter to virtual platforms. Despite the challenges ALS and the COVID-19 shutdown placed in her way, she has always done what she could to assist others with ALS in Orlando.

Molly has worked tirelessly to raise awareness about ALS through her active participation in the Orlando Walk to Defeat ALS and the Orlando CEO Soak. She remains a frequent and active participant in the Chapter’s Central Florida support group, and she is admired for her positive attitude as well as her willingness to offer advice to others who are newer to their diagnosis.

Congratulations, Molly!

2022 Patti Palmer Award Winner: Christine Bright

Image

Board Chair Hampton Graham, CEO Ray Carson and Award recipient Christine Bright smile at the camera as she is being presented with a crystal plaque.

Board Chair, Hampton Graham, (left)
and CEO, Ray Carson, (right) present
the Patti Palmer Award to Christine
Bright (center).  

The Patti Palmer Award was created in memory of the ALS Florida Chapter’s first Executive Director, Patti Palmer. Patti worked with the ALS Florida Chapter from 1987 up until August 2019. "I had the opportunity to work with her for only a few months and learned quickly that in many ways she represented the very soul of the Florida Chapter staff team," said Ray Carson, CEO of ALS Florida Chapter. 

The Patti Palmer Award is presented annually to a current or former staff member of The ALS Association who has exemplified excellence in helping to move forward our organizational mission.

In 1998, Christine was the ALS of Florida Chapter's first Care Services Director. Since the Chapter didn’t have a staff of care service professionals like we do today, she formed partnerships with outside agencies and trained their staff to represent the Chapter and deliver our programs. She led the care services department for over a decade and slowly assembled staff to help implement her vision. Christine is largely responsible for building the foundation for today’s programs and services. 

“I can’t begin to count all I have learned from her – she was a true role model. Patients came first in everything she did and every decision she made.” - staff member nomination.

Congratulations, Christine!

Thank You

We want to extend a big thank you to the medical professionals, caregivers, ALS community and our gracious sponsors and vendors for supporting this event. Without you, this event would not be possible. 

To view our full symposium album please visit our Facebook page. If you would like to view the symposium presentations and awards ceremony, please bookmark this blog post and check back soon for a link to the video recording. 

We are already looking forward to seeing everyone next year! 

Print Friendly and PDF