Blog

Greater Philadelphia Chapter / ALS Association
Felicia Cleary and Hayley Noel: Volunteering to Help Create a World Without ALS
For more than ten years, Donna has worked with The ALS Association Greater Philadelphia Chapter as Director of Development. She has also been a constant advocate, supporting the chapter’s ALS families through fundraising initiatives, and a caring, compassionate ally throughout their ALS journey. Hayley and Felicia joined Donna in her mission to help people impacted by ALS when they were young girls.
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Northern Ohio Chapter
The Jane Calmes ALS Scholarship Fund Kicks Off Year Four
The Jane Calmes ALS Scholarship Fund is now accepting applications for the 2022-2023 school year! This fund will provide a $5,000 scholarship to students seeking a college degree or vocational certificate who have been financially burdened by an ALS diagnosis. The deadline to apply is May 18, 2022.
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ALS Association
Managing Everyday Living Activities and ALS
Occupational therapists are key members of the clinic team for individuals living with ALS. As ALS progresses, most people gradually lose their ability to use their hands and their arms as their muscles weaken. Occupational therapists help to provide expertise and creativity to help patients better manage daily activities for as long as possible.
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ALS Association
Lindsay Litterini: Why I am an ALS Volunteer
We recently caught up with Lindsay Litterini, volunteer and board member for The ALS Association Western Pennsylvania Chapter, to learn more about her personal connection to ALS and her passion to join the fight against the disease.
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ALS Association
The Jane Calmes ALS Scholarship Fund Kicks Off Year Four
The ALS Association is accepting applications for The Jane Calmes ALS Scholarship Fund, which was established in 2019 to support post-high school education for students whose lives have been impacted by ALS. Scholarship recipients receive up to $5,000 per year to help cover the cost of education.
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ALS Association
The 2022 Sheila Essey Award Winner
The American Academy of Neurology, The ALS Association and the American Brain Foundation have awarded the 2022 Sheila Essey Award to Matthew Kiernan of the Brain and Mind Centre at the University of Sydney in Australia and a member of the American Academy of Neurology. We recently caught up with Dr. Kiernan on Connecting ALS to discuss advances in ALS research since he first entered the field and how the Essey Award will help move his research forward.
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ALS Association
Jackie Heltz: My Journey as an ALS Volunteer
Volunteering for The ALS Association is the longest I’ve ever done anything in my life. There’s always more to be done, but creating an environment, virtual or in-person, where people impacted by ALS feel welcome, empowered, and heard is so important.
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Wisconsin Chapter
My Dad the Super Doc: Joe Kelley
Super Doc Joe Kelley was a veterinarian near Madison, WI. He left a legacy of love, laughs, and generosity.
Brenna Kelley, daughter of Super Doc Joe Kelley, shares with us Dr. Joe's story and the children's book that was written about him.
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ALS Association
Living with ALS: Resources to Help Manage Your Independence
On a recent Connecting ALS podcast episode, Maintaining Mobility, we sat down with Shannon Terrell, Doctor of Physical Therapy at the Kaiser ALS clinic in Colorado to learn more about her experience treating people living with ALS and get her thoughts about how she helps her patients manage their mobility.
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ALS Association
Mindful Mobility
Heidi Tarr Henson, diagnosed with ALS last spring, shares thoughts about her personal journey living with the disease, how she’s managing her personal changes in mobility and how she strives to just live in the moment.
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ALS Association
Living with ALS: Making Sure Your Home Environment is Safe and “Livable”
Home modifications can be permanent or temporary, low­‐tech or extremely sophisticated. To help address the many questions and concerns people and their families often have, The ALS Association has developed a series of educational videos to introduce and explain strategies to remain safe while living with the disease.
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ALS Association
Why I’m Signing the ICER Petition – And You Should, Too
It is on us—those who have experienced this disease firsthand, those of us who are living with the disease, those who are serving as caregivers—to determine the value and quality of life with ALS. We need to stand up and object to discriminatory assessments that overlook the most important things that give life value.
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ALS Association
Brett and Jeannine Schoenecker: True ALS Heroes
Before Brett’s ALS diagnosis, he was an electrician, an outdoorsman and a musician. His hands were his livelihood, creative outlet and unfortunately, the first part of his body to be affected by the disease.
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Florida Chapter
Concrete Cowboy Rides for ALS
Gene Nifenecker rode Cash the bull in the Cracker Day Rodeo to raise money for ALS and make his wife, who is living with the disease, smile.
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ALS Association
Living with ALS: Maintaining Your Independence as Mobility Declines
Finding ways to remain independent and prevent potential harms caused by everyday living activities can be a challenge for people living with ALS as their disease progresses. To help address the many questions and concerns people and their families often have, The ALS Association has developed a series of educational videos to introduce and explain strategies to remain safe while living with the disease.
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Greater Philadelphia Chapter / ALS Association
Peter & Lura Sawyer: True ALS Heroes
Peter Sawyer of Mechanicsburg, PA is a military veteran and has been living with ALS for five years. He and his wife and caregiver, Lura, are tireless advocates for The ALS Association’s mission and exemplify true ALS heroes.
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ALS Association
Living with ALS: Planning for Mobility Changes
Decreasing mobility is a challenge faced by every person living with ALS at some point in their disease journey. Finding ways to help people maintain their independence and prevent potential harms caused by everyday living activities is a priority for the ALS community.
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