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ALS Association
The Walk to Defeat ALS® Continues to March on Safely This Spring
While local conditions for events vary state by state, the priority is the safety and well-being of people with ALS, their families and caregivers, and our volunteers and staff. So while Walk to Defeat ALS® events may look a little different from place to place, the ALS community will creatively come together safely in local markets to honor a loved one with the disease, to remember those who have passed, and to raise awareness and critical fundraising support for the fight against ALS.
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Massachusetts Chapter
From the Desk of the Executive Director: March 2021
On the one year anniversary of COVID-19 shutting down the world, Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to update the local community on the Chapter's ambitious goals and an exciting new event.
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ALS Association
What ALS Focus Hopes to Learn from ALS Caregivers
ALS Focus recently launched its third survey, gathering data from ALS caregivers to identify the unique needs and challenges of ALS caregiving. Responses to this survey will help translate the caregiver experience into action and influence ALS programs and policy decisions. ALS Focus Director Dr. Sarah Parvanta detailed the questions her team is asking in the current survey during a recent episode of Connecting ALS. A portion of that conversation has been edited and condensed below.
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ALS Association
The Michelsens' Journey with Love and ALS
ALS can take away many things, but one thing it cannot take away is love. In celebration of Valentine’s Day, we wanted to highlight one of many stories of love, commitment and ALS. Meet Jonathan and Janetta Michelsen.
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ALS Association
Celebrating International Day of Women and Girls in Science
This week the world turned their focus to the celebration of women and girls in science, shining a light on the tremendous gender gap that still exists in the world of science. We asked Jill Yersak, Ph.D., Vice President of Mission Strategy at The ALS Association about her personal experience growing up in the STEM field.
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ALS Association
Feeding Tube Awareness Week Q&A
This week, The ALS Association commemorates Feeding Tube Awareness Week, an opportunity to recognize the important role that feeding tubes can play in the lives of people with ALS.
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Florida Chapter
Don and Alice Worden - Love in Deed and Truth
Don and Alice Worden have been married for 42 years. Don is living with ALS, but the couple live their lives to the fullest and enjoy the little things that bring constant love. This is the perfect Valentine's Day love story. <3
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ALS Association
COVID Webinar Updates Community on Vaccine Access
The ALS Association recently hosted an COVID-19 update webinar for the ALS community, with panelists Dr. Lou Libby, Dr. Richard Bedlack, Dr. Cherise Rohr-Allegrini, Dr. Urvi Desai and Dr. Marinella Galea, moderated by ALS Association Board of Trustees member Dr. Ken Menkhaus, addressing issues specific to the concerns and interests of the ALS community.
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ALS Association
One Man’s Story About Why He Joined the Fight Against ALS
Through word of mouth, Stuart and his wife Marcia found five or six families in their community who were also dealing with the impact of an ALS diagnosis. They started an informal support group. The group started working with the chapter relations team at The ALS Association and formed The ALS Association Alabama Chapter.
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Massachusetts Chapter
ASICS Falmouth Road Race Q&A - Team Challenge ALS 2021
The ALS Association Massachusetts Chapter is thrilled to enter the 2021 ASICS Falmouth Road Race with an inaugural team of 15 runners. Learn more about this year's application process, challenge requirements, and other relevant information with this question and answer article.
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