Animal lovers everywhere understand that having pets can help decrease stress and improve our emotional and physical well-being. For people living with ALS, the unconditional love of a pet can provide some comfort and companionship on their journey.
Not that long ago, it would have been extremely difficult for Casey to tell his story while he was living with ALS. But thanks to research funded in part by the ALS Association, he as been able to find and use his voice again.
Each year, the Hero Awards recognize special people in the ALS community who have made a significant impact for those living with the disease. People like Brooke Eby, whose approach to just about everything is to joke about it, even living with ALS. Find out how her sense of the absurd and positive outlook on life has helped raise awareness about the disease.
Finding a way to be resilient in the face of challenges can be difficult. But for people living with ALS, their families and caregivers, resilience can be very beneficial to their overall wellness and emotional health. Discover how resiliency can be a learned skill and steps you can take to be more resilient.
Each year, the Hero Awards recognize special people in the ALS community who have made a significant impact for those living with the disease. People like Katie Adams, who knew she wanted to do something to help others with ALS but wasn’t sure how, until it just “landed in my lap.”
In honor of the 20th year of our Milton Safenowitz Postdoctoral Fellowship Program, we are catching up with some of our funded fellows, like Clotilde Lagier-Tourenne, M.D., Ph.D., an associate professor of neurology at Massachusetts General Hospital and Harvard Medical School, to find out how the award impacted her research and career.
Our nationwide Creative Pursuits Program can help participants emotional well-being by enhancing self-confidence, easing anxiety, and experiencing the joy of self-expression. It provides an opportunity for enhanced social interaction and connections with new people for individuals living with ALS and their caregivers.
Each year, the Hero Awards recognize special individuals in the ALS community who have made a significant impact for those living with the disease. Individuals like Ron, who found a new focus for his life-long service to others after being diagnosed with ALS.
Exercise and movement can be a vital part of a wellness routine, the benefits of which have been proven to be beneficial not only for physical health, but also for mental health. This can be true for people living with ALS as well. Learn how you can craft exercise routine that is safe and makes sense for you.
ALS reversals, where someone with a confirmed ALS diagnosis recovers significant lost motor function, are rare. Could genetics play a role? Learn more about a new discovery and what it could mean for the ALS community.
August is Advocacy Action Month for ALS advocates—an opportunity to push for changes in policies that affect the lives of people living with ALS, and we want you to join us! Learn some quick ways you can get involved and help make real change for the ALS community.
Olympic medalist Ron Joseph waited a long time to be inducted into the U.S. Figure Skating Hall of Fame, but he was unable to attend the ceremony in-person after being diagnosed with ALS. But he didn’t want to miss the opportunity raise awareness about the disease for the ALS community.
Weather and other natural emergencies can, and do, occur everywhere, at any time of year. For people living with ALS, their families and caregivers, having a plan for how to deal with emergency situations is vital because of the challenges the disease presents.
Our inaugural ALS Nexus conference brought members from across the ALS community in care, research and advocacy together to connect in a way that’s not been seen before, working and collaborating to change the future of the disease.
We are shining a spotlight on one of our current Milton Safenowitz Postdoctoral Program Fellows, Alexander Lin-Moore, Ph.D., a postdoctoral researcher at Brown University.
From July 14-17, the ALS community will be coming together in Texas at ALS Nexus to work on making ALS livable for everyone, everywhere, until a cure is found.
It has now been 85 years since Lou Gehrig stood on the field at Yankee Stadium on July 4, 1939, and delivered his “Luckiest Man” speech as part of Lou Gehrig Appreciation Day. The speech itself has become the stuff of baseball lore, even though no complete recording, on film or audio, remains.
Currently, ALS is considered a “diagnosis of exclusion,” meaning people experiencing ALS-like symptoms often have to undergo a battery of different tests designed to rule out other conditions. This means it takes, on average, 10-15 months from the time a person first notices symptoms to receiving an ALS diagnosis.
Reducing this time to diagnosis is critical to avoid unnecessary testing and medical procedures and for people living with ALS to get access to multidisciplinary care and treatments that can help maintain their quality of life.
In honor of the 20th year of our Milton Safenowitz Postdoctoral Fellowship Program, we are catching up with some of our funded fellows, like Kasper Roet, Ph.D., CEO and co-founder of QurAlis, to find out how the award impacted his research and career.
Since the Ice Bucket Challenge, advancements in assistive technology have significantly improved the quality of life for people living with ALS, helping them to communicate more effectively, maintain independence, and remain engaged in daily activities despite the challenges posed by the disease.
