ALS caregivers each bring different life experiences to the role they are thrown into. But one thing they do have in common is that they are all doing the best they can, each and every day. It is up to all of us in the ALS community to support them and empower them as we strive to make ALS livable for everyone, everywhere, until we can cure it.
Even though he hung up his Army fatigues decades ago, Nick, a veteran living with ALS, continues to step up when someone in the community needs help, supporting those around him with the same commitment to selfless service he embraced while in uniform.
Caring for someone living with ALS is a unique journey, often filled with emotional and physical challenges. Our Nationwide Connect support groups offer a space for caregivers to connect, share, and find strength together.
Cliff Eby shares his thoughts and advice on being a caregiver to someone living with ALS based on his experiences as father and co-caregiver to Brooke.
No matter where his lab equipment has been located, Dr. Akerman has been focused on untangling the underlying causes of neurodegenerative diseases like ALS.
For more than 50 years, Dr. Stanley Appel has devoted his life to finding solutions for people living with ALS. Learn more about his incredible work and his reasons for hope in ALS research and care.
For people living with ALS, respiratory health is often one of the first things your care team will discuss with you and your family, and for good reason. Being proactive about planning and making decisions before they need to be made can be key to helping you live the life you choose throughout your journey.
For Michelle Frederick, making ALS livable means giving people living with the disease choices to continue to do the things they care about in a way that works for them, including finding ways for them to stay where they are most at home: their own home.
California has made an important stride in the fight against rare diseases by becoming the 29th state to establish a Rare Disease Advisory Council (RDAC). Governor Gavin Newsom’s recent signing of the RDAC bill into law represents a tremendous victory for the rare disease community, including people living with ALS.
In 2025, important changes are coming to Medicare that could significantly impact how people living with ALS access prescription drugs and manage their out-of-pocket costs. Learn how YOU can benefit from these important new programs.
Dr. Merit Cudkowicz, director of the Sean M. Healey & AMG Center for ALS and chief of neurology at Massachusetts General Hospital, will never forget the very first person with ALS that she cared for.
Type 2 diabetes, with its links to heart disease, vision loss, kidney disease, and other complications, is considered a major public health problem. However, it may also hold solutions, offering clues to ways ALS might be prevented.
Artificial intelligence (AI) is becoming increasingly embedded in our everyday lives, often in ways we aren’t even aware of. From streaming services suggesting what to watch based on previous selections to GPS apps recommending the best routes to take factoring in current road conditions to ChatGPT compiling a list of potential examples that could be used to introduce this very blog.
October is National Physical Therapy Month, the perfect time to explore the work physical therapists do and recognize the vital role they play in helping people with ALS manage challenges as a critical member of the multidisciplinary care team.
Casey and his sister Breanna started ballet dancing when they were young, and both pursued dancing professionally, at least for a while. But when Breanna learned she had ALS they decided they needed one last dance, together.
Telehealth has proven to be beneficial to the ALS community, but for many existing regulations can make it difficult to access the care they need. Learn how we are working across public and private sectors to bring this valuable tool to everyone, everywhere.
Nutrition is not just important, but essential for every living being. This Malnutrition Awareness Week, we wanted to take a look at the nutritional challenges faced by people living with ALS and how, working together, we can combat them.
As students dive into the 2024-25 school year, we wanted to take the opportunity to introduce you to some of this year’s recipients of the 2024 Jane Calmes ALS Scholarship Fund.
Five talented young scientists dedicated to advancing our understanding of ALS and the search for new treatments have been selected as our 2024 Milton Safenowitz Postdoctoral Fellows. Learn more about them and their promising research.
When it comes to finding new treatments and cures for ALS, it’s not just a professional goal for Milton Safenowitz Postdoctoral Fellow Dr. Zhang—it’s also a deeply personal one. Learn more about how he is dedicating his career to learning more about what causes ALS so he can help develop better treatments for the disease.
