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REPORT FROM HOUSTON: Home Visits
Thomas Todd is one of the hundreds of people living with ALS who was impacted by Hurricane Harvey. As Harvey approached, Thomas was able to safely ride out the storm with friends, but the hurricane had a devastating impact on his house. Harvey flooded his house with nearly two feet of water.
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A Different Kind of Ice Bucket Challenge
My heart sinks as my mind races with questions. What happened to this man? This is ALS? I thought he was just diagnosed? I knew it was rapidly progressing, but it can’t happen this fast, can it? My train of thought was interrupted by another question from the doctor: “Can you speak at all?” He shakes his head. No. Only the ventilator speaks.
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Every ____ Adds Up: Your Responses
The ALS Ice Bucket Challenge showed us that when small things add up, they can make the impossible happen. As part of our #EveryDropAddsUp campaign, we're asking YOU to share what things add up to make a difference in your life. Below are some of the responses we've received so far.
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ALS Entrepreneur Kevin Gosnell Passes Away Leaving Important Legacy in ALS ONE
Kevin Gosnell, founder of ALS ONE, passed away on Monday because of complications from the disease. Gosnell was diagnosed with ALS in spring 2015 and immediately put his business acumen and CEO leadership skills to work, convening the best minds in the ALS community. He founded ALS ONE in January 2016 and brought together leading neurology experts and care specialists from Massachusetts in partnership to leverage their institutions’ strengths to expedite progress toward finding a treatment for ALS within the next four years.
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ANNOUNCING Every Drop Adds Up
Last year, I accepted a Webby Award in New York City for co-founding the ALS Ice Bucket Challenge. Acceptance speeches are limited to just five words, so when I went on stage I said: "Every August Until A Cure."
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