Eleven individuals who joined together for the 2024 Team Challenge ALS Boston Marathon shows that while each runner completes a marathon on their own, the results of the group can sometimes be so much greater, in so many ways. Overall, the team raised over $190,000 for the fight against ALS.
Paul Seaver, the manager of community engagement and events for the ALS Association who oversees major events in the Boston area, has a personal connection to ALS—having lost his father to the disease in 2013. He shares his story on how raising awareness and funds for ALS became his priority, even before taking on the role professionally.
Since 2021, June 2 has been celebrated as Lou Gehrig Day by Major League Baseball (MLB) in ballparks across the country -- a day to help spread awareness and raise funds for people living with ALS and their families. Here are some of the events happening across the ALS Association to celebrate this legacy that joins together the baseball and ALS communities.
We know finding ways to optimize treatments and care, and increasing access to care, helps people with ALS live the way they want with a better quality of life. That’s where multidisciplinary care comes in.
Selina Lavonne Rambo wrote the book "Grandpa's Wise Words" for her children to remember the good times they've experienced with their grandpa even though he was facing ALS. She hopes to share with other families with young kids who are affected by the disease.
Nothing has brought more ALS awareness like the Ice Bucket Challenge during the summer of 2014. The viral sensation spanned the globe, forever changing the future and trajectory of ALS. And the awareness and funds generated by the social media phenomena put us on a path to end this disease.
Dana Julian's great grandfather passed away from ALS and is part of her "why" she volunteers for the cause. Read more about how she got involved with the ALS Association.
Renovation Hunters joined the fight against ALS when they took on an extensive cabin renovation to help a family impacted by the disease in Pennsylvania. The series includes three exciting episodes of the reno beginning tomorrow, April 5, at 8:30 p.m. on the Outdoor Channel. Read more about the family’s journey and don’t forget to tune in to watch!
ALS Nexus brings together the perspectives of the ALS community to connect, collaborate, and change the future of ALS. This is more than a conference – it’s an opportunity to spark new ideas and accelerate progress towards our goal of making ALS a livable disease until we can cure it.
When Jules and Maria started a podcast in 2019 to tell their story it wasn’t about ALS. But even though Jules’ ALS diagnosis in 2020 would change that, their story is still about so much more—including life, love, and even comedy.
Today is Rare Disease Day, an event that takes place worldwide, typically on the last day of February each year, to help raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. In recognition today, Kristina shares what it’s like to be a ALS caregiver for her husband, Lamar, and her unique perspective on the rarity of ALS.
Amanda Howard has always used writing to process things personally and professionally. When she faced the challenges of living with ALS, she started blogging about it - at first for herself, and then for the community.
Stories have connected us for generations, often providing impact and making waves of change. Discover some of the most powerful stories from the ALS community and share to help spread awareness of this disease today.
There is no doubt that 2023 saw significant breakthroughs in advocacy, care and research. Here's a look at the top ten blogs of the year that covered it all.
Even as they face ALS, Tim and Deanna Trausch try to live by message on the ornament that hangs on their bathroom mirror: “Today is a good day to have a good day.”
For people with ALS and their families, traveling presents challenges beyond the typical concerns about weather, delays, and traffic jams. But with some planning and patience, you can ensure everyone is able to make it to their destination safely. Here are some tips to help make the trip as smooth as possible.
Wendy Wilson shares the story of her husband, Michael: his ALS diagnosis and how their family loves, laughs together and supports each other through this journey.
"I feel the more people that use their voices, the more attention we will bring to ALS, and the closer we will be to finding treatments and one day at a cure." Katie Adams is an advocate for people living with ALS, like herself.
Motivated by the profound impact of ALS on their lives and families, Alex and Cory decided to use their shared passion for golf, and both their fathers' love of the sport, to make a difference. They envisioned creating an annual event that would raise both awareness and funds for ALS research and support, and with that the ‘100-Hole Challenge to Beat ALS’ was born.