Join the Fight Against ALS: Become an Advocate

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Do you have a passion for making your voice heard and empowering others? Do you want to make a difference in the lives of people with ALS?

The 16,000+ advocates for The ALS Association are people living with ALS, family members, friends, caregivers, researchers, scientists, and healthcare professionals who are ready to see a world without ALS.

They are willing to ask their elected congressional representatives to provide funds for research toward treatments and a cure for ALS, and to provide better access to care and services for those affected by the terrible disease. They’re making a real and lasting impact on our ALS community.

There is no better time than today to become an ALS Advocate! Every effort inspires hope and helps bring us one step closer to a world without ALS.

As an ALS advocate, you’ll educate decision-makers on the needs of people with ALS and the need for more research. You’ll help us amplify our collective voice on Capitol Hill to affect real change for the ALS community, while developing relationships with your members of Congress.

Four Steps to Becoming an Advocate

Anyone with internet access can sign up in a few simple steps:

  1. Go to the “Become an Advocate” page on our website here.
  2. Click on “Sign up to be an ALS Advocate.”
  3. Provide your contact information so you’re matched with your federal representative and senators. Click “Remember Me” to save your information for when you respond to Action Alerts. (More about Action Alerts is below.)
  4. Click “Email Opt-in” to receive Action Alerts.

You won’t be swamped with calls to take action. Messages calling on advocates for a group, organization, or issue to influence public policy through action, called Action Alerts, are timed to ensure your message has the maximum impact on Capitol Hill.

Our Action Alerts will provide you with necessary background on an issue and include a letter you can send to Capitol Hill in three easy clicks. You’ll have the opportunity to personalize the letters to your members of Congress, if you wish. (You can view our specific 2018 legislative priorities here.)

Please join our ALS Advocate community today!

Next month, more than 500 advocates will join forces at the 2018 National ALS Advocacy Conference to learn about the latest ALS research, network, and share their stories with members of Congress. If you’d like to come, register here.

Comments

Submitted by: Bryanne L. on Mon, 12/27/2021

Volunteer

Submitted by: Shari M. on Wed, 01/11/2023

ALS Advocate

Submitted by: Roxy A. on Tue, 01/17/2023

I have more than 20 years experienced as a Licensed Vocational Nurse in Acute settings, Urgent care and able to find Resources for exploring options and making decisions throughout the disease process.

Submitted by: Liz H. on Tue, 03/21/2023

ALS advocate

Submitted by: Jim C. on Mon, 11/27/2023

Just wondering what this group does for als

Submitted by: Stephanie O. on Wed, 11/29/2023

Jim, we encourage you to go to the ALS Advocacy Action Center at https://als.quorum.us/homepage/ and see all the federal and state policy priorities that ALS advocates across the country have helped shape. Because of advocate support, we have been able to increase funding for care services and research and pass new legislation beneficial to families affected by the disease. Learn more at https://www.als.org/advocacy.

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