June 21 is a solstice, a turning point, if you will, and each year the ALS/MND community around the world celebrates Global ALS/MND Awareness Day to express their hope that this day will be yet another turning point in the search for causes, treatments and ultimately a cure of ALS/MND.
While it’s estimated that more than 30,000 people are living with ALS in the US each year, the disease is not unique to this country. It’s a global problem. People are living with this disease all over the world, and for every person diagnosed, the impact of the disease will forever be felt by their loved ones.
Global ALS Awareness Day was originally initiated by the International Alliance of ALS/MND Associations. The Alliance is a global network of ALS/MND associations, informed by people living with ALS and ALS caregivers, that builds capability for its members and connects to external stakeholders. “Collectively we all work towards the vision of a world free of ALS/MND,” says Catherine Cummings, Executive Director of the organization.
Calaneet Balas, President and CEO of The ALS Association, has been active with the organization’s board since 2017 and is currently the board chair. “I’m honored to be a part of this amazing assembly of ALS leaders from around the world,” said Balas. “The Alliance has both the vision and potential to foster the kind of international collaborations that will result in faster and more cost-effective research as well as broader access to therapies, assistive technology, and consistent standards of care.”
Global Day is an event that knows no borders or boundaries, so everyone can get involved. Here are a few ideas of how you can join the global fight today:
- Like and share our social media posts today on Facebook and Instagram to help share information and education about ALS/MND. And don’t forget to use the hashtag #ALSMNDWithoutBorders!
- Start a Global ALS Awareness Day fundraiser on your Facebook page to share with your family and friends and encourage them to get involved.
- Show your support for the Fundamental Rights of people living with ALS/MND by reading and sharing this advocacy tool.
- Learn more about ALS. Subscribe to our enewsletters to continue to receive the most up-to-date information on ALS research and care.
- Subscribe to our blog to continue to follow stories from people in the ALS community and learn more about the disease.
- Make a donation. Your support will make a difference in the lives of so many, helping us to accelerate research, advocate for policy change, and provide critical care for families impacted by ALS.
Join the fight, spread the word. It will take all of us, working together around the globe, to create a world without ALS.