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About Our Chapter

Local Highlights

SAVE THE DATE: Changing the Game

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Changing the Game gala save the date, black background with gold and white text

Join us on Thursday, February 9th for an inspirational evening dedicated to raising awareness and defeating ALS at the Changing the Game gala. Lou Gehrig, the iron horse of baseball, showed extraordinary commitment to the game for many years. Even in the face of the devastating diagnosis of ALS, his spirit of courage remains an inspiration to this day. Changing the Game forever secures the Spirit of Lou Gehrig Award Honorees as champions of ALS who, like Lou Gehrig, "Changed the Game."

The gala brings together individuals to generate funds that further our mission to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. The semi-formal event will feature a dinner, awards ceremony, silent and live auction, and keynote address from Walter Woltosz, creator of the first Augmented Communication Device.

Click here to learn more about the gala, partnership opportunities, and ticket information.
 

Smith Station Community Rallies with Renee

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Family gathered at Walk

When people living with ALS, their families, friends, and community come together to support one another and raise awareness about the needs of people affected by ALS - something magical happens.  

In October, Renee Richardson and her Team held a Walk Your Way in Smith Station. Several local people living with ALS and other families affected by the disease joined and the spirit of community was amazing. Renee invited local Auburn ALS family Lamar Woody, his wife Kristina, and their daughter to join the Walk - as well as Gary Godfrey and his wife Carol who came over from Georgia. The Dial family was also in attendance in memory of Mike Dial who lost his battle with ALS earlier this summer.

Check out this amazing episode from the local program, Street Talk, to learn all about the Walk and these great families.  

Eclipse ALS with Us

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Eclipse glasses, red with lenses

With both an Annular Eclipse in 2023 and Total Eclipse in 2024, American Paper Optics has created exclusive Eclipse ALS glasses for safely viewing the eclipses! 

For a limited time, American Paper Optics is partnering with The ALS Association to support our mission to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. From now until April 8th, 2024, for each 12 pack of these eclipse glasses purchased, APO will donate 50% of profits to The ALS Association. 

These safe solar glasses are exclusively manufactured with 2 mil scratch resistant silver/black polymer lenses that filter out harmful ultraviolet and infrared rays and intense visible light. With an optical density of 5 or greater, these ISO 12312-2 compliant and CE certified eclipse glasses are independently tested to ensure safety for all phases of the eclipse. 

Enjoy the eclipse with your loved ones while also supporting the ALS community and raising awareness!

Purchase your Eclipse ALS glasses here!

Become a Community Champion

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Become a Community Champion flier, volunteers in green shirts

We are ramping up our volunteer efforts more than ever. At each Walk, we offered a QR code for attendees to scan where they can Become a Community Champion, and the response was better than we could have imagined. So many members of the ALS community are ready to get involved, will you join them?

What is a Community Champion?
Community Champion is someone who wants to make an impact in the ALS community. Whether that's through advocacy, volunteer opportunities at events, skills training, and beyond, there's something that will fit everyone. 

Your help is needed. Click here to sign up to Become a Community Champion and start making an impact on the ALS community.

Advocacy Update

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Capitol with American flag waving

We are entering the planning phase of a State Report Card Project that will be complete mid-2023. Aligned with our goal to make ALS a livable disease by 2030, report cards will reflect how livable ALS is in each state - how accessible and well-funded are care services for people living with ALS? Has Medicaid been expanded? How accessible are ALS specialists via telehealth? 

These are just a few of the policy questions these report cards will reflect, as well as provide a thumbnail of what ALS looks like in each state by the numbers: number of those diagnosed, number of ALS Centers of Excellence, etc. We will use this data to target our state advocacy and raise awareness in state legilatures.

We have started meeting with our lobbyists and developing advocacy goals and events for the upcoming legislative sessions.

We are in need of advocacy volunteers. Become a voice for those living with ALS and fight for change. Reach out to James Sharp (Managing Director, Advocacy) at [email protected] for more information.

Upcoming Events

Changing the Game
February 9, 2023 - Regions Field, Birmingham, AL
https://alsal.ejoinme.org/ctg23

Support Groups

Available in-person and virtually each month

Did you know that our local area support groups are now meeting in-person and with a virtual option in Huntsville, Greater Birmingham, Greater Montgomery, The Wiregrass, and The Greater Mobile/Baldwin areas?

Please join us each month as we gather for information, support, and fellowship. Your local care services coordinator can provide you all of the details for how to attend, and what topics or speakers will be presented. For example, this past month in the Greater Montgomery Area Support Group, we welcomed James Roberson from the State Health Insurance Program to help us prepare for the Open Enrollment Period and talk about services offered through their office including support in choosing the best plan for your needs, and prescription assistance programs.

Contact your Care Services Coordinator for more information, or email Melissa Enfinger, Director of Care Services at [email protected].

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About Our Chapter