Bobbie Cummings Memorial Advocacy Fund

If we are to succeed in our mission to end suffering and death from ALS, it won’t happen just in a research lab. This movement must also involve elected officials at the state and federal levels of government. And, it must be led by volunteers - regular people whose lives have been impacted by ALS - rallying together to demand change from their elected officials.

The ALS Association is the organization empowering volunteers to do just that - influence, change and impact the future of ALS. From gaining dramatic increases in funding for ALS research to ensuring all Americans have access to the multidisciplinary care they need, our work can lead to innovative breakthroughs. Meeting and educating legislators is an important part of the work we do at the Florida Chapter, both in Tallahassee and in Washington, D.C.

Tim Cummings is an Honorary Lifetime Board Member who lost his wife Bobbie to ALS in 2008. He has traveled to Tallahassee and Washington, D.C. to advocate for those who are living with and have passed away from ALS. Tim believes that to truly serve people living with ALS and their families in Florida, we need all Florida residents to become ALS advocates. Our state has over 1,300 families currently impacted by ALS. That number will continue to grow, and we must do so much more to provide the best possible resources and choices for them.

The Bobbie Cummings Memorial Advocacy Fund provides travel stipends to people who are living with ALS in Florida to participate in state and federal advocacy events. Because of this program, those affected by ALS are able to tell their stories to elected officials who are making critical public policy decisions.

CLICK HERE to make a donation to the program. Please indicate "Bobbie Cummings Memorial Advocacy Fund" on the donation form.