ORLANDO -- On Saturday, October 8th, more than 100 families living with ALS will have the opportunity to connect with one another for a day of impactful learning and discussions on topics related to the disease. The Symposium will take place at the Rosen Shingle Creek Hotel and Conference Center in Orlando starting at 8 a.m.
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord. When the motor neurons die, the brain can no longer initiate and control muscle movement, causing people to lose the ability to speak, eat, move and breathe. There is no cure for ALS yet.
The ALS Association Florida Chapter will be hosting its Annual Hope and Help Symposium, which features experts in the ALS field who can provide guidance to people living with ALS, including caregivers.
“After two years of virtual symposiums, we are thrilled to be able to bring those battling ALS together for this important educational experience,” said Ray Carson, president/CEO of The ALS Association Florida Chapter. “For those who are still not comfortable gathering for an in-person event, we also plan to record and broadcast many of the presentations on our social media channels.”
The ALS event will feature Dr. Richard Bedlack, MD, PhD, MS, professor of neurology at Duke University and director of the Duke ALS Clinic, as well as a panel discussion on clinical care and research featuring doctors and researchers from the ALS Clinics in Ft. Lauderdale, Ft. Myers, Gainesville, Jacksonville, Miami, Sarasota, Orlando and Tampa.
The event also will feature expo booths and a learning lab with equipment specialists featuring information and products that can aid with mobility, respiratory, communication and more.
For more information about this event or to register click here.
About The ALS Association Florida Chapter
Since 1987, The ALS Association Florida Chapter has been “covering all the bases for people living with ALS in Florida." We provide patient programs, advocate on behalf of patients with our government leaders, create awareness of the disease, and fund research. In addition, the organization provides financial support to our statewide multidisciplinary ALS clinics and research facilities, enabling them to increase patient care. For more information, visit us on our website at www.ALS.org/Florida or on Facebook, Twitter or Instagram @ALSFlorida.