We made a promise to the ALS community–we will make ALS livable for everyone, everywhere, until a cure is found. But it will take all of us—working together—to accomplish that goal.
It will take researchers and clinicians collaborating to find new treatments and cures. That means more clinical trials and patient participation in research. That includes finding ways to optimize treatments and care, increasing access to that care, and improving assistive technologies to help people with ALS live the way they want, with a better quality of life.
It also means we will need to prevent or delay the harms of ALS. We need to diagnose the disease sooner and find ways to identify ALS risk factors so we can prevent it altogether. And as new treatments are available, we need to fight for policies and access to allow people with ALS the chance to get the help they need sooner.
That is why we are hosting ALS Nexus.
What is ALS Nexus?
ALS Nexus brings together the perspectives of the ALS community to connect, collaborate, and change the future of ALS. This is more than a conference – it’s an opportunity to spark new ideas and accelerate progress towards our goal of making ALS a livable disease until we can cure it.
By attending ALS Nexus, researchers, health care professionals, advocates, and members of our ALS community will gain:
- Meaningful connections with peers, insight into the needs of the ALS community, updates on cutting-edge research and clinical advancements, and inspiration to guide future efforts.
- Strategies to effectively advocate for more funding for ALS research, clinical care, and patient-centric legislation to ensure people impacted by ALS receive the benefits they deserve.
- The opportunity to influence future research, advocacy initiatives, and patient care.
Why Should I Attend ALS Nexus?
We are the only national nonprofit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, we build hope and work to enhance quality of life while aggressively searching for new treatments and cures.
Our conference, ALS Nexus, provides a unique opportunity to gather the best and brightest minds across the full spectrum of the community where they can come together, ask questions, learn from one another, and use that experience to propel our mission further, faster.
Join us in Dallas, Texas | July 14 – 17, 2024
Sign up to receive ALS Nexus updates HERE. To continue to follow stories about people living with ALS in the community and learn more about the disease, subscribe to receive our weekly blogs in your inbox HERE or follow us at als.org/blog.
Comments
I'm still somewhat mobile, compared to most ALS patients, but there's no realistic chance that I can travel to the conference. Moreover, my respiration equipment costs many thousands of dollars and I don't dare subject it to the care of the airlines.
Hello Frank, we understand your concerns, and that's why we are providing a free virtual conference exclusively for people living with ALS and their caregivers that will include live-streamed sessions. You can learn more and register at https://www.als.org/als-nexus/people-living-als-and-caregivers.
Conference
Hello Leslie, we've emailed you in regards to attending the conference if you are interested.
It is extremely difficult for a CALS or a PALS to navigate the labyrinth of available grants and/or resources for dealing with this horrific disease. It would be so helpful to have someone at a level (State or National) who could encompass all of this information and be readily available to answer questions or direct inquiries.
Thank you Tom for reaching out! I've forwarded your suggestion to our conference organizers in charge of the resources and information being provided to the attendees.
I would love to attend the conference and share my experiences as a daughter and caregiver of my mom who passed away in January of ALS. The office in Arlington was a tremendous help to me but there were so many challenges regarding healthcare, home attendants, supplies, food and emotional support outside of just dealing with the disease that so many are not aware of. I would love to speak at this conference if there is a window of opportunity.
Thank you Tiffani for your interest and willingness to share your story. I've put you in touch with one of our conference organizers through email.
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