Everyone reacts differently to receiving an ALS diagnosis. No matter your reaction, at some point, you’ll be ready to begin making decisions and planning for the future.

As ALS progresses, you’ll likely have many thoughts and conversations along the way about planning ahead for various treatments, planning for the later stages of the disease and making end-of-life decisions.

Your choices about what you want may change over time, so it’s a good idea to keep revisiting them with your loved ones and health professionals so your wishes are always known and respected.

Ultimately, you’re the decision maker.

But you’re not alone. Seek the support of family and friends, your ALS clinic team, other people and families living with ALS and your local ALS Association chapter.