Did You Know March is National Nutrition Month
AND National Social Work Month?

The multidisciplinary care model brings together a team of specially trained health care professionals who can address the many needs of people living with ALS, allowing them to receive care from each discipline during a single visit. In recognition of this month, we’re highlighting two key members of the team: the dietician and the social worker.

More Than Just Food: The Dietitian's Critical Role in ALS Care

Just About Anything, Anytime—The Social Worker’s Role in ALS Care

Paying attention to the “big things” in life, while not forgetting to pay attention to the “little things,” is what palliative care is all about. Read more about this whole-person approach to care and how it can improve your quality of life.

In most people’s journey with ALS, they will be confronted with the decision of using a feeding tube to help maintain proper nutrition and enhance their quality of life. Learn more about what you need to know to help decide if it’s right for you.

An ALS diagnosis often leaves people feeling overwhelmed and uncertain about their future. Among the many challenges they face, uncertainty about insurance coverage for treatments and equipment they need to live shouldn’t be one of them. Learn more about how we’re working to make sure people with ALS and their families have access to what they deserve, and resources already available to help.

The Hugh and Herbert Hoffman ALS Fund will profoundly impact the lives of people with ALS and their loved ones, advancing our goal of making ALS livable until there is a cure. The fund is designated to advancing promising ALS therapies, developing new or strengthening existing ALS clinics, and enhancing access to ALS care for people living with ALS. Learn more.

We’re excited to announce our new partnership with Roon, another great resource for people living with ALS and their caregivers. This free app is a Q&A platform featuring experts from ALS centers at leading academic institutions such as from Duke, Emory, Columbia, MGH and more, as well as advocates, patients and caregivers. The app offers medically vetted answers to thousands of the top questions people with ALS may have via short-form video content.

Roon is available on the iOS app store, and on web and mobile web at roon.com.

A new ALS Focus survey is launching in early April that asks about what should matter most when new ALS drug treatments and clinical trial designs are being developed. If you are living with ALS or are a current or past caregiver, this is an opportunity to share your perspective and help researchers, companies that develop drugs, and policymakers better understand the needs and desires of the ALS community. No experience with clinical trials or drug treatments is necessary to participate.

Register TODAY and get a survey link delivered directly to your inbox!

ALS follows no predictable path and adheres to no set timeline. Planning ahead helps to alleviate some of the chaos of change, but how do you know what to plan for or what questions to ask? My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.

Presented by Dr. Kuldip Dave, senior vice president of research at the ALS Association

Monday, March 25, 2024, 2:00 p.m. ET

Last year, the Food and Drug Administration approved the first-ever genetically targeted therapy for ALS, which served as a promising endorsement of the antisense technology that underlies its use. How does this technology work? And how are researchers using it to develop new treatments for people with genetic and non-genetic forms of ALS? Dr. Kuldip Dave, senior vice president of research at the ALS Association, will answer these questions and more during this upcoming webinar.

We also have a vast library of prerecorded webinars you might find interesting available HERE. Here are some examples you might find helpful:

Building Resilience When You're Affected by ALS: Mental Toughness and Courage

Nutritional Considerations in ALS

To view past webinars available in our archive, visit our website HERE.

ALS Is a Rare Disease, But Sometimes Doesn’t Feel Like It

The Generous Son of an ALS Parent Elevates the Fight Against ALS

Telling Her Story for Herself, and For the ALS Community

What Comes to Mind When You Hear the Word Joy? THIS.

Better, Together: The ALS Multidisciplinary Care Approach

To learn more about the disease and follow stories about people living with ALS in the community, subscribe to receive our weekly blogs in your inbox here or follow us at als.org/blog.

We collaborate with some of the best ALS physicians and clinics across the United States to help ensure people living with ALS have access to specialized care.

Our nationwide network of care teams and partners provide people living with ALS, and their families and loved ones, with support in communities across the country.

Our ALS support groups are designed with one thing in mind enhancing quality of life and supporting families impacted by ALS wherever they live. When families share their experiences and challenges, they offer and receive comfort, encouragement and care.

We're dedicated to providing you and your loved ones with the information, support and tools you need free of charge. Learn more about the care programs we offer both in your state and nationwide.

We have assembled multiple resources, including publications and videos produced by the Association, other related books, fact sheets and resource guides pertaining to ALS and ALS care. 

For more information, visit our website at als.org.

Stay up to date with the latest news in ALS research by signing up for our monthly e-newsletter, Research Matters.

We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communications@als.org.