Since an ALS diagnosis in 2017 forced his early retirement from Apple, Steve Kowalski has made ALS his full-time job. He currently serves on the board of directors for The ALS Association Massachusetts Chapter, attends the national Advocacy Conference each year, is a NEALS research ambassador and a patient fellow at the MND/ALS International Symposium; all while also serving as a patient speaker to numerous local pharmaceutical companies, colleges, and universities.
In 2018, Steve's former colleagues formed a team for the annual Massachusetts Ride to Defeat ALS ® event in Steve's honor. They have since raised more than $220,000 in support of Steve and our mission; to discover effective treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
