Among the many challenges faced by a person living with ALS, maintaining a healthy body weight can be difficult for some. As the disease progresses, maintaining good nutrition as well as avoiding malnutrition is key to improving quality of life.

We recently launched Nationwide Connect, monthly online support groups for both male and female ALS caregivers designed with one thing in mind—enhancing quality of life and supporting families impacted by ALS regardless of where they live.

While ALS progresses differently for each person living with the disease, respiratory challenges are something everyone with the disease will face during their journey.

Finding accurate and timely information can play a key role in equipping those impacted by an ALS diagnosis with the skills they need to provide the best possible quality care.

While there is no one-size-fits-all answer to every caregiver question, there is often much to be learned from people who are, or who have been, a caregiver for someone with ALS.

We’ve recently released a new series of at-a-glance one pagers to address many of the questions and concerns people with ALS and their caregivers have as they progress through their ALS journey. These FREE resources are available on our website to view and download in both English and Spanish.

ALS follows no predictable path and adheres to no set timeline. Planning ahead helps to alleviate some of the chaos of change, but how do you know what to plan for or what questions to ask? My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.

Presented by Ambereen K. Mehta, MD, MPH, FAAHPM

Monday, January 29, 2024, 2:00 p.m. ET

Join us to explore ways to ensure your ALS care plan focuses on helping you stay involved in what matters, emphasizes your physical and emotional comfort, and focuses on the needs of your loved ones as well.

We also have a vast library of prerecorded webinars you might find interesting available HERE. Here are some examples you might find helpful:

Transportation & Travel Tips for People Living With ALS

Maintaining Family Celebrations During a Journey With ALS

To view past webinars available in our archive, visit our website HERE.

Tips for Having an Enjoyable Holiday Season

“She’s Crazy Strong Inside”—A Young Woman’s ALS Caregiver Journey

“I’ll Do This for You”—A Caregiver Story

Using the Power of Partnership to Save Money for People Living with ALS

Perspectives on Physical Therapy from a Person Living with ALS

Helpful Advice from One Caregiver to Another

The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care.

Our nationwide network of chapters and partners deliver a robust portfolio of care and support programs designed to enhance quality of life and support families impacted by ALS. 

Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness. 

We have assembled multiple resources, including publications and videos produced by The Association, other related books, fact sheets and resource guides pertaining to ALS and ALS care. 

For more information, visit our website at als.org.

Stay up to date with the latest news in ALS research by signing up for our monthly e-newsletter, Research Matters.

We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communications@als.org.