Calaneet Balas
President & CEO of the ALS Association
Kwame Adjepong, MD
Assistant Professor, Neurology & Palliative Medicine, University of California, San Francisco
Arshia Ahmad MD, MSc, MRCP, PhDc
Director, Medical Affairs at uniQure
Dennis Akkaya
Chief Commercial Officer, MyTomorrows
Eric Anderson, M.D., Ph.D., MBA, FAAN
VP of Clinical Operations and Care Delivery, Synapticure
Stanley Appel, M.D.
Director of the Ann Kimball & John W. Johnson Center for Cellular Therapeutics at Houston Methodist Center
and Director, Houston Methodist, ALS Association Certified Treatment Center of Excellence
Suma Babu, M.D., M.P.H., MBBS
Assistant Professor of Neurology at Harvard Medical School
Alan Balch, Ph.D.
CEO of Patient Advocate Foundation and National Patient Advocate Foundation
Michael Benatar, MBChB, M.S., DPhil
Executive Director of The ALS Center at the University of Miami, ALS Association Certified Treatment Center of Excellence
C. Frank Bennett, Ph.D.
Executive Vice President and Chief Scientific Officer at Ionis Pharmaceuticals
Megan Blackwell, Ph.D.
Principal Investigator, Pison Technology Inc.
Allison Bulat
Strategic Advisor, Community Engagement at Northeast ALS Consortium
Chelsey Carter, Ph.D., M.P.H.
Assistant Professor of Public Health at Yale School of Public Health
Don Cleveland, Ph.D.
Distinguished Professor and Chair at the University of California at San Diego
John Costello, M.A., CCC-SLP
Director, Jay S. Fishman ALS Augmentative Communication Program at Boston Children's Hospital
Merit Cudkowicz, M.D., MSc.
Chair of Neurology, Massachusetts General Brigham
David Darragh
Managing Director, Team Gleason
Kuldip Dave, Ph.D.
Senior Vice President, Research at the ALS Association
Trinity Deibert, MS, CCC-SLP
SLP, AAC Specialist, Bridging Voice
Brooke Eby
Person Living with ALS
Larry Falivena
ALS Association Board of Trustees, Person Living with ALS
Dean Feener
Chief Information Officer, ALS Association
Michelle Fredrick, PT, ATP
Manager, Equipment Assistive Technology, ALS Association
Erin Fleming
Vice President, Research and Development at ProJenX
Chris Gibbons, Ph.D.
Senior Vice President at Smartbox Assistive Technology Ltd
Andrea Goodman
CEO, I AM ALS
Kelly G. Gwathmey, M.D.
Associate Professor of Neurology, Virginia Commonwealth University
Elizabeth Harrington, M.S.
Certified Genetic Counselor, Columbia University Neurological Institute
Terry Heiman-Patterson, M.D.
Director, Temple MDA/ALS Center of Hope and Center for Neurodegenerative Diseases at Temple University School of Medicine
Julie Henry
Caregiver
Mike Henry
Person Living with ALS
Sharon Hesterlee, Ph.D.
Chief Research Officer at Muscular Dystrophy Association
Brenton W. Hill, JD, M.H.A
Head of Operations and General Counsel-Coalition, Health AI
Sandy Hinckley, Ph.D.
VP, Head of Discovery at QurAlis
Kara Nett Hinkley, MPP
Vice President, State Policy, ALS Association
Jennifer Hjelle
Chief Community Engagement Officer, ALS Association
Leigh Hochberg, M.D., Ph.D.
Director, Center for Neurotechnology and Neurorecovery at Massachusets General Hospital
Kim Holland
Former Oklahoma Insurance Commissioner and ALS Advocacy Committee Member
Kathleen Holt, MBA, JD
Associate Director of the Center for Medicare Advocacy
Ileana Howard, M.D.
Associate Director of Neurology for ALS, Veterans Health Administration
Mike Ibarra, M.D.
Person Living with ALS
Justin Ichida, Ph.D.
VP, Head of Neuroscience Research at the University of Southern California
Scott Kauffman
Chair, ALS Association Board of Trustees
Shelby Kinsey
Advocate and Person Living with ALS
Stacey Kinsey
Advocate and Caregiver
Melanie Lendnal, Esq.
Senior Vice President, Policy & Advocacy, ALS Association
Dr. Alan Leshner
CEO, Emeritus of the American Association for the Advancement of Science (AAAS)
Nadejda Leavitt
Senior Director, AI for Healthcare & MedTech at IQVIA
Eduardo Locatelli, M.D., M.P.H.
Medical Director, David and Cathy Husman Neuroscience Institute, NSU Health, ALS Association Certified Treatment Center of Excellence
Claire MacAdam, PT, NCS
Physical Therapist at Massachusetts General Hospital
Chris McFarland ATP, CAPS
Director, Livable Homes, Lowe's Companies, Inc.
Laurie McFarren
Manager, Education & Competencies at ALS Association
Ambereen Mehta, M.D., M.P.H., FAAHPM
Associate Professor, Department of Cellular and Molecular Medicine at Johns Hopkins School of Medicine
Cory Mosley
- Veteran and Person Living with ALS
Jennifer Myhre, MSSW, LICSW
Care Services Manager, the ALS Association
Raul G. Nogueira, MD
Endowed Professor of Neurology and Neurosurgery Division Chief, Cerebrovascular Medicine Director at UPMC Stroke Institute
John Novak, M.D., MS
Neurologist and ALS Clinic Medical Director at OhioHealth
Manish Raisinghani, M.B.B.S., Ph.D.
CEO of Target ALS
Laura Ranum, Ph.D.
Kitzman Family Professor of Molecular Genetics and Microbiology at the University of Florida
Jill Recker, LMSW
Executive Director of Ascend Health
Jeffrey Rothstein, M.D., Ph.D.
Director, Robert Packard Center for ALS Research at Johns Hopkins
Tracy Sandy-Ali, MPH, CRN, LPN
Vice President, Clinic Centers Program and Outreach, the ALS Association
James Schorey
Chief Technology Officer of Control Bionics Inc.
Jean Swidler
Executive Director of End the Legacy
David Taylor, Ph.D.
Vice President, Research and Strategic Partnerships at ALS Society of Canada
Jennifer Thompson
Executive Director, Hope Loves Company
Christine Vande Velde, Ph.D.
Professor at the Université de Montréal
Ashkan Vaziri, Ph.D.
Founder and CEO of BioSensics
Lauren Webb, LCSW
Chief Advocacy and Outreach Officer, Les Turner Foundation
Bernie Zipprich
Founder, Zipprich Ventures LLC, and ALS Association Board of Trustees Member
