With the developing news regarding COVID-19, we want to take a moment to share how The ALS Association is addressing the concern about our programs and events.
- Please be assured that the work of the ALS Association will continue.
- Our first priority is the safety and well-being of people with ALS, their families and caregivers, and our staff.
- Chapter staff will be working remotely and still available to our constituents daily.
- We anticipate that some activities may need to be cancelled, modified or rescheduled; we will communicate with you directly regarding changes to upcoming plans, so please watch your email.
- You can find the latest updates about our activities on our Facebook and Twitter pages.
- For the most recent information about the coronavirus (COVID-19), The ALS Association recommends that you reference the websites for the Centers for Disease Control (CDC), the World Health Organization (WHO), and state and local health authorities.
For specific information about symptoms you may be experiencing or questions about personal exposure as someone living with ALS or as a caregiver, please contact your physician directly.
Thank you for your patience as we manage this rapidly shifting situation.
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Receiving a diagnosis of ALS is challenging and overwhelming. While no two people with ALS will experience the condition the same way, there is a great deal of collective knowledge as well as valuable resources available.
Assistance For Diagnosed Persons and Families:
Information about ALS and living with ALS; referrals to national, state and local resources to assist persons diagnosed with ALS, caregivers and healthcare professionals throughout West Virginia.
Durable Medical Equipment Loan Program:
Durable medical equipment available to loan those diagnosed with ALS without a source to pay for the equipment. Including those admitted to hospice services, or awaiting customized equipment delivery.
Education and Outreach:
- The Meet and Greet Educational Support and Connection Program will provide educational opportunities through organized community events providing vital information, education, and networking for those diagnosed with ALS, their family and friends; and for local healthcare practitioners in non-metropolitan areas. Including access to providers of products beneficial to the needs of those living with ALS.
- The Professional Outreach Program will provide educational programs available to increase awareness of ALS and provide information related to basic care, treatment and support strategies to the professional health care community.
- The Community Awareness Program will provide educational programs available to increase awareness of ALS and provide information related to the research, advocacy and care service functions of the ALS Association within the general community.
ALS is a 100% service connected diagnosis. Significant medical and program services are available to veterans and family dependents. Please contact Sara Hoten at (800) 641-8140 for immediate information and referral services.
Providing outreach to those surviving a friend or family member’s journey with ALS for a minimum period of 14 months.
More Resources and Information
We encourage you to seek help from us.