Receive Free Genetic Counseling
The ALS Association believes that upon diagnosis, people living with ALS/MND and their families must have the right to access genetic counseling and testing, current education about clinical genetics in ALS/MND, and safeguards against genetic discrimination. Thanks to a sponsorship from Biogen, the diagnostic company Invitae is offering genetic counseling and testing to people with ALS and their families at no charge. For more information about genetic counseling or how to find a counselor in your area, please visit the National Society of Genetic Counselors at www.nsgc.org. But before you schedule your first appointment, talk to your doctor to get answers to your initial questions and to get started.
Learn more about the ethical considerations of ALS genetic testing in a video from experts through our collaboration with the International Alliance of ALS/MND Associations.