National and State Advocacy Initiatives
ALS advocates use their voices and experience to inform legislators about the critical needs of people living with ALS, their families and caregivers. As an ALS advocate, you can build relationships with your lawmakers that can help advance legislation, create and improve policies, and change laws to help the thousands of people living with ALS.
When we join together as ALS advocates, we can make real change happen.
The Hoffman ALS Financial Assistance Program
Grants for Individuals Living with ALS
The Hoffman ALS Financial Assistance Program provides grants up to $1,000 to help individuals with ALS overcome financial barriers to accessing multidisciplinary care. This grant can be used for direct expenses such as lost wages, transportation costs, lodging, and meals. If you are interested in this grant, please complete the interest form below.
Grant Interest Form
For information about the Hoffman ALS Financial Assistance Program Grant, visit the Hoffman ALS Financial Assistance Program web page.
2025/2026 Marcia LaRiche College Scholarship Application Now Open!
Deadline to Apply: May 14, 2025
In 2025, a limited number of scholarships will be awarded to children of parents who have been diagnosed with ALS living in Northeast Ohio. Scholarship amounts will be based on available funding. College Now Greater Cleveland will select the recipients. Scholarships will be awarded based on the applicant's scholastic record, student community service, student essays, ACT and SAT test scores, financial need, and recommendations from individuals familiar with the applicant. High school seniors, current undergraduate college students or students between the ages of 18 and 25 who are not currently enrolled in college may apply.
PLEASE REFER TO THE FLIER FOR COMPLETE DETAILS AND ELIGIBILITY
Note: This scholarship is managed by College Now Greater Cleveland and not by the ALS Association. For questions, contact Senior Scholarship & Financial Aid Coordinator Carolyn Rodriguez at 216-635-0120 or via email at [email protected].
Community Connection: In-Person Group (Northwest Ohio)
Third Tuesday of the month
Location and times vary.*
Join us for our Northwest Ohio Community Connect: In-Person Group! People living with ALS, caregivers and loved ones are all welcome! This will be a safe place to:
- Connect with others who are experiencing the same challenges you are facing.
- See how others cope with the diagnosis.
- Learn more about ALS.
- Share tips and personal experiences.
- Find personal connections and support.
Location:
Luckies Barn & Grill
3310 Navarre Ave
Oregon, OH 43616
Dates:
January 14, February 18, March 18
Time:
1:00-2:30 p.m.
*Meeting cancelation may happen due to inclement weather during the winter months.
Contact Care Services Coordinator Lisa Barnes to register:
Lisa Barnes or call 419-247-0003.
Ohio Support Groups:
Caregiver Support
Tuesday, January 14
12:00-1:00 p.m.
This group is open to anyone caring for someone living with ALS. Join our Care Services staff to discuss topics related to caring for a loved one with ALS. Bring your thoughts, questions, challenges, triumphs, and an open heart.
Register Here
Meet and Greet
Saturday, January 18
10:30 a.m. - 12:30 p.m.
This group is open to anyone. Join our Care Services staff for an open discussion with others affected with or caring for a loved one with ALS.
Register Here
Assistive Technology Office Hours
Fourth Monday of the month
5:00 p.m.
No appointment needed. Just pop into the zoom call! Ask questions and get answers to all your assistive technology needs!
Get the Ohio DEFEAT ALS License Plate
The DEFEAT ALS Ohio special interest license plate uses beautiful imagery of sunflowers to raise awareness and funds for ALS. Every DEFEAT ALS license plate purchase includes a $25 contribution that goes directly to the ALS Association to help serve Ohio residents affected by ALS. Plates can be purchased at your local Ohio BMV or online at www.bmv.ohio.gov.
Upcoming Events
Join us for a local event to help advance the fight against ALS and connect with other members of the ALS community!
Support Groups
Our ALS support groups are designed with one thing in mind – enhancing quality of life and supporting families impacted by ALS regardless of where they live. Addressing the unique challenges the disease presents, they follow best practices and join people together who are dealing with similar difficult circumstances.
Programs
We're dedicated to providing you and your loved ones with the information, support and tools you need free of charge. Find program details below and contact us for more information about how we can help you.
Contact Us
216-592-2572, ext. 10197
[email protected]
