ALS advocates use their voices and experience to inform legislators about the critical needs of people living with ALS, their families and caregivers. As an ALS advocate, you can build relationships with your lawmakers that can help advance legislation, create and improve policies, and change laws to help the thousands of people living with ALS.
National and State Advocacy Initiatives
State Profile
Whether we are talking with lawmakers, care providers, or researchers, it’s important to be able to share what ALS and resources for ALS look like in each state. Use the ALS State Profile below to both educate and advocate to make ALS livable for everyone, everywhere, until we find a cure.
State Report Card
The ALS Association surveyed all 50 states and the District of Columbia (DC) across eight priority policy areas to identify policies that, when adopted, will significantly improve the health, well‐being, and longevity of people living with ALS.
State Policy Priorities
Our goal is to make ALS a livable disease while we continue to search for new treatments and cures.To get there, the ALS Association supports important policy changes that directly impact the lives of people living with ALS and their families.
The ALS Association is committed to advancing critical policies that help to find new treatments and cures, optimize current treatments and care, and prevent or delay the harms associated with ALS. State policymakers have the power to change the future of ALS by taking action on the ALS Association’s public policy priorities.
Current Legislation
Share Your Story
When we share our stories as ALS advocates, we can make real change happen.
Upcoming Events
Join us for a local event to help advance the fight against ALS and connect with other members of the ALS community!
