ALS Roundtable Program Meeting Summaries

Twice a year, we bring together a diverse group of individuals who reflect a range of ALS expertise and experiences. Through a series of facilitated discussions and small group breakouts, ALS Roundtable participants help identify future actions needed to improve ALS care, research, and advocacy.

Below you will find key takeaways from each of these meetings. The summaries represent a condensed overview of the conversations held throughout the day and do not provide a detailed account of each session.

fall 2024

Delivering the Benefit of Comprehensive Palliative Care to the ALS Community 

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Spring 2024

Ensuring FDA-Approved Therapies Reach People with ALS 

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Fall 2023

Leveraging Real World ALS Data to Improve Combination Therapies and Prevent Complications 

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Spring 2023

Developing Action Plans to Expand Clinical Trial Capacity and Improve Inclusivity Across the ALS Community

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increasing clinical trials
Fall 2022

Increasing the Number of, and Access to, High-Quality Clinical Trials in ALS

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Spring 2022

Developing Action Plans to Advance Inclusion in ALS Diagnosis, Care and Research 

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Fall 2021

Strategic Priorities for ALS: A Community Discussion

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Spring 2021

Access to Essential Care, Services, and Supports

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Fall 2020

Decreasing ALS Complications

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access to clinical trials
Spring 2020

Reducing Time to Diagnosis

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Fall 2019

Access to New Therapies

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Spring 2019

Setting ALS Association Strategic Priorities

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