ALS Roundtable Program

It’s going to take all of us working together to make ALS a livable disease. That’s why, twice a year, we invite people living with ALS, caregivers, clinicians, academic investigators, industry partners, nonprofit leaders, and government officials to address one of our community’s biggest needs or challenges. Then, through the power of partnership, we transform those discussions into tangible improvements in ALS treatment and care.

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The Roundtable isn't a program that ends when the meeting ends. It's an opportunity to continue developing initiatives of value in conjunction with the ALS Association.”

ALS Roundtable Partner
Turning dialogue into action

Turning Dialogue into Action

Through candid conversations, the commitment of dedicated working groups, and the strength of our partnerships, we catalyze initiatives that help transform the experience of being diagnosed and living with ALS.

SEE THE IMPACT OF This PROGRAM

discussing what matters most

Discussing What Matters

ALS Roundtables create an inclusive environment that fosters robust conversations about pressing issues facing the ALS community, such as reducing time to diagnosis; access to care, treatments, and clinical trials; and delivering the benefits of palliative care.

EXPLORE PAST TOPICS AND MEETING SUMMARIES

Learning from diverse perspectives

Learning from Diverse Perspectives

ALS Roundtables assemble a diverse group of individuals who reflect a range of expertise and experiences. Together, participants discuss critical issues, explore opportunities for change, and recommend future actions to improve ALS care, advocacy, and research.

Every time I hear from experts and people living with ALS, I learn something new. That's valuable because it guides me on [how my company can know] where unmet needs are and provides information on the best way to meet them.”

ALS Roundtable Participant

Work With Us

As members of our Roundtable Advisory Panel, our partners work closely with us to help select the topics that guide ALS Roundtable discussions and actively participate during the in-person meeting. If you have questions about how you can get involved, please reach out to Melody Schaeffer at [email protected].

Current Partners

We are grateful for the support of our industry partners and for the valuable input and insight they bring to our ALS Roundtable Program.

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