ALS Focus Registration Instructions

Instructions on Registering and Completing Surveys

Here is a step-by-step guide on how to register for ALS Focus and complete the surveys.

Are you eligible to participate in ALS Focus?

People with ALS, current ALS caregivers, and past ALS caregivers may participate in ALS Focus. To register, you must be 18 years old or older and reside in the United States. If you are living with ALS, you may ask someone you trust to respond on your behalf.

Are you NEW to ALS Focus? Follow these steps to register:
  • Step 1: Click the red button below that says ‘CLICK HERE TO TAKE ALS FOCUS SURVEYS’
  • Step 2: Complete the questions and provide your email address to receive ALS Focus surveys.
  • Step 3: Check your email for a message from [email protected]. This email will contain a unique link to your ALS Focus Registration Survey.
  • Step 4: After completing the Registration Survey, eligible participants may take the Demographics Survey. Registration is complete after taking the Demographics Survey.
  • Step 5: Stay tuned for future ALS Focus surveys! These surveys will be emailed to you directly from [email protected].

click here to take ALS focus surveys

Did you register for ALS Focus in the past? Follow these steps to continue taking surveys:
  • Step 1: Check your email for a unique link to your newest ALS Focus survey! This message will come from [email protected].
  • Step 2: Stay tuned for future ALS Focus surveys! These surveys will be emailed to you directly from [email protected].
Unsure if you already registered for ALS Focus? Follow these steps:
  • Step 1: Click the red button below that says ‘CLICK HERE TO TAKE ALS FOCUS SURVEYS’
  • Step 2: Complete the questions and provide your email address to determine if you are already registered for ALS Focus.
  • Step 3: Check your email for a unique link to your next ALS Focus survey! This message will come from [email protected].
  • Step 4: Stay tuned for future ALS Focus surveys! These surveys will be emailed to you directly from [email protected].

click here to take ALS focus surveys

If you have any questions about registering for ALS Focus or completing surveys, please email us at [email protected]

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