ALS Focus Multimedia
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Hearing Directly From the ALS Community Through ALS Focus
Connecting ALS hosts Mike and Jeremy turn their focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight. They are joined by Dr. Sarah Parvanta, director of ALS Focus, and John Robinson and Lora Pollari-Welbes, two members of the ALS Focus advisory committee, to walk us through what we learned from the first survey and how listeners can get involved.
The ALS Association continues to find new ways to listen to the ALS community. In this Talk to Defeat ALS Podcast, Dr. Sarah Parvanta discusses the new ALS Focus survey project. Topics include what The ALS Association has already learned from surveys, how people can participate, and creating the next round of surveys.
The Importance of Hearing From Caregivers About Their Needs
Connecting ALS hosts Mike and Jeremy are joined by Dr. Sarah Parvanta, director of ALS Focus, to learn how the voices of ALS caregivers are being elevated to make sure services and programs are tailored to their needs.
ALS Focus Survey – Learning What Matters Most for People with ALS and Caregivers
Join Sarah Parvanta, Ph.D. for a refresher on the ALS Focus program. She also discusses the survey 1 results.