The ALS Association is committed to making ALS livable for everyone, everywhere, and it will take all of us, working together, to urgently propel research to find new treatments and a cure.
This month, learn more about the latest news and updates on our research grants and numerous ALS clinical trials.
Awards totaling nearly $800,000 will support 16 innovative research projects with the potential to significantly impact the experience of ALS by optimizing current care and treatments, finding new treatments and cures, and aiding with diagnosis and prevention.
Inaugural Trial Capacity Awards will support efforts at 13 established and emerging ALS clinical trial sites to increase the number and diversity of people living with the disease who have the opportunity to participate and improve the efficiency and pace at which these studies are conducted.
An NIH council voted to endorse draft research priorities which identify the most promising priorities for research that may lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of ALS.
Team of researchers led by USC Stem Cell scientist Dr. Justin Ichida and former Milton Safenowitz Postdoctoral Fellow, Dr. Yichen Li, has identified two promising avenues for developing new treatments for diverse forms of ALS.
Under the mentorship of Dr. Meredith Jackrel, Anuradhika is studying a way to reverse the clumping of misshapen TDP-43 and FUS proteins in motor neurons and prevent the cellular toxicity of these clumps, also known as aggregates.
Insights gained from studying genetic forms of the disease are likely to benefit those with sporadic ALS as well. Therapies aimed at correcting the consequences of gene mutations may lead to treatment for all cases of ALS. The ALS Association has made significant investment into identifying new genes for ALS and has supported all the major gene discoveries.
ALS Focus allows people living with ALS, and current and former caregivers the ability to participate in research outside of clinical trials and is available to all at any stage of the disease. Your opinions matter to help strengthen care, accelerate therapy development, improve clinical trials, influence insurance coverage decisions, and more.
Register to participate in future surveys HERE, and let your voice be heard.
Clinical research is the only way that promising laboratory science can be translated into treatments and cures for ALS and other neurological diseases. People with ALS, along with family members and caregivers, are essential partners in this research. For the most accurate and up-to-date information on both federally and privately funded clinical studies focusing on ALS and other similar motor neuron diseases, visit our website.
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Every person living with ALS in the U.S. can take part, and there is no fee to participate.
The ALS Association partners with the Northeast ALS Consortium (NEALS) to provide educational webinars for people with ALS, caregivers, and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments.
For more detail about current ALS research, the projects we fund, and the numerous focus areas we support, visit als.org/research.
Stay up to date with the latest ALS care news by signing up for our quarterly e-newsletter, Care Matters.
We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communication@alsa-national.org.