Support for Caregivers

We know being the primary caregiver for a loved one living with ALS can be challenging, and it’s likely not a role you planned for. In addition to being on call 24/7, you may have additional responsibilities, like working a full- or part-time job and taking care of children.

You’re often so busy supporting your loved one that your own physical and/or mental health takes second priority. 

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We want to help alleviate some of your stress through education, information, and in-depth resources to help you throughout your caregiving journey.

 

Nationwide Connect

Join Other Caregivers on Nationwide Connect

Taking place online via Zoom, our nationwide virtual caregiver support groups offer a safe place where you can get information that’s practical, constructive, and helpful while fostering a sense of camaraderie and connection.
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Learn From “One Caregiver to Another”

Regardless of where you are in your caregiving journey, hearing from others who are in a similar situation can help add insight, comfort and support. After all, the best support often comes from those who’ve walked the path before you.
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Explore ALS Care Connection

ALS Care Connection is a private online calendar that can be used to support the entire family by organizing volunteers from your community – friends, neighbors, members of community organizations like your church, or other service groups – that can help with day-to-day responsibilities for families impacted by ALS.
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resources

Educational Resources

Fact sheets, guides, videos, and webinars provide you with quick, easy access to FREE resources to manage life with ALS.

Learn more

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Care Matters E-Newsletter

Subscribe today to receive the latest information about ALS care, disease management, and resources to help you navigate your ALS journey.

Learn more

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from one caregiver to another

My ALS Journey™

An interactive, web-based tool that allows people impacted by ALS to take control of their journey with the disease.

Learn more

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A Caregiver Story: Karen and Tony Vick

“Having those specific things like ‘I could do this’ is really helpful because in our minds (as caregivers) we have a whole list of things that we need to accomplish and that would make our weeks easier. But having to voice that and tell people that sometimes can be a struggle.”

Read More

Whether as a caregiver for someone living with ALS or loved one to someone living with the disease, sharing your story can help others in the ALS community and beyond feel connected to the impact ALS has on the people it touches. 

Thank a caregiver in your life by including #ALSCaregivers or share your caregiving story using #MyALSStory so we all can follow along. 

Share Your Story

10 Ways to Help Families Impacted by ALS


Caregiving for someone with ALS has a broad and lasting impact, in both daily life and long-term well-being. Download this infographic about ways to support families impacted by ALS. Share it on your social platforms today!

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