Resources for Learning About ALS

We’re committed to providing you with quick, easy access to a variety of resources related to ALS – from fact sheets and publications and videos produced by the Association to book recommendations and resource guides.

Links to websites outside of The ALS Association are provided for your browsing convenience but do not represent formal endorsement of their content.

To order physical copies of these resources, visit our order portal.

ALS Association
Youth Education and Support
Based on subject matter-specific research, three youth education books were developed for children, teens, and young adults.
Book, Guide / Manual
ALS Association
Medical Information Materials
We’ve developed several materials as communication and educational tools to help inform medical providers, as well as provide pertinent insurance and family information. Access them now.
Guide / Manual
ALS Association
Familial ALS Resource Booklet
It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.
Guide / Manual
ALS Association
Guías de Recursos Vivir con ELA
Estos materiales didácticos fundamentales se diseñaron con el fin de informar y educar a las personas sobre la ELA en un formato exhaustivo y que se entiende fácilmente.
Guide / Manual
ALS Association
Daily Activities Made Easier for People with ALS
This manual discusses what aspects of that task people with ALS may have difficulty with and provides possible ways to make the challenges smaller or to compensate by using adaptive equipment.
Guide / Manual
ALS Association
Living with ALS Resource Guides
These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format.
Guide / Manual
ALS Association
Families and ALS Resource Guide
This resource guide is the result of many years of clinical social work practice and research with families, children, and youths affected by neurological illness.
Guide / Manual