Resources for Learning About ALS

We’re committed to providing you with quick, easy access to a variety of resources related to ALS – from fact sheets and publications and videos produced by the Association to book recommendations and resource guides.

Links to websites outside of The ALS Association are provided for your browsing convenience but do not represent formal endorsement of their content.

To order physical copies of these resources, visit our order portal.

25 results
ALS Association
FYI: Emergency Preparedness for People with ALS
Emergencies and disasters can strike quickly and without warning, forcing people to leave or be confined in their home. For the thousands of Americans with ALS, emergencies such as fires, floods and acts of nature present a real challenge. It is important that people with ALS and their family members make plans to protect themselves in the event of a disaster. This needs to be addressed not only at home, but also when away from home, such as at work or on vacation.
Factsheet
ALS Association
FYI: Driving Challenges with ALS
Driving an automobile is an economic, social, and recreational necessity for most Americans. A privilege most teens seek, driving soon occupies a central role in the lives of most adults. For people with medical problems, such as ALS, conflicts may arise in balancing self-reliant driving privileges and society's need to protect public safety.
Factsheet
ALS Association
FYI: Dressing with Ease, Style and Comfort
Dressing and undressing are often challenging task among people with limited mobility. While buttons and zippers are frustrating for some folks, others may find reaching arms through armholes of putting legs through leg holes tedious chores. Besides the obstacles people face for dressing independently, it is not always easy for their assistants. Wearing accessible clothes and selecting attire to meet individual needs will make dressing easier, sparing unnecessary aggravation and fatigue.
Factsheet
ALS Association
FYI: Respiratory Challenges in ALS - Coughing
Coughing is a familiar, yet complex reflex action that functions to clear material from the airway. It protects the airway from irritants, saliva, or foreign particles that may have been inhaled (aspirated), and secretions, cellular debris, and microbes generated by the lungs or bronchial tree. Coughing can be involuntary; a reaction to inhaling a foreign particle or wayward food particle, or voluntary, intentionally taking a deep breath to clear mucus from the throat.
Factsheet
ALS Association
Advocacy Webinars
We regularly bring together leaders in the fight against ALS to share the latest developments in the work being done to make ALS livable for everyone, everywhere until we find a cure.
Webinar / Video