Resources for Learning About ALS

We’re committed to providing you with quick, easy access to a variety of resources related to ALS – from fact sheets and publications and videos produced by the Association to book recommendations and resource guides.

Links to websites outside of The ALS Association are provided for your browsing convenience but do not represent formal endorsement of their content.

To order physical copies of these resources, visit our order portal.

ALS Association

FYI: Bill of Rights for People Living With ALS

The ALS Association prepared the Patient Bill of Rights to inform people living with ALS about their rights related to health care and health plan insurance coverage.

Factsheet

ALS Association

FYI: Second Opinion FAQs

The only way a person can begin to accept an ALS diagnosis is to be certain that the diagnosis is correct.

Factsheet

ALS Association

FYI: Reasons for Living with ALS

While staunchly supporting the right of people with ALS to make health care decisions affecting their life and death, The ALS Association believes just as strongly in the right for people to be fully informed about ALS including symptom management and comfort measures as ALS progresses.

Factsheet

ALS Association

FYI: Minimizing Fatigue

Be recognizing the signs of fatigue, knowing which factors worsen symptoms, and learning how to conserve energy, persons with ALS can greatly improve their quality of living.

Factsheet

ALS Association

FYI: Be a Careful Internet User

It is important to educate yourself and carefully assess the content of web sites.

Factsheet

ALS Association

FYI: Advance Directives

An advance directive is a legal document used to instruct others about your health care wishes. It acts as a guide for your loved ones and health care providers to make health care and treatment-related decisions on your behalf, should you become unable to convey them due to illness or incapacity.

Factsheet

ALS Association

Maintaining Good Communication