Coping With Burnout

As a caregiver for someone living with ALS, you have a very important role. The everyday tasks you do for your loved one are often time-consuming and require a great deal of effort.

If you don’t learn to recognize that certain responsibilities and expectations can take their toll on you, regardless of whether you’re doing them out of love, you may find yourself headed down the path of burnout.

Burnout can be defined as “exhaustion of physical or emotional strength or motivation, usually as a result of prolonged stress.” Burnout may also be as subtle as simply no longer feeling "connected" to what you’re doing.

This can apply in several situations – in the workplace, with family or with hobbies and social activities. A key to guarding against burnout is being willing to take a close look at your life to become more conscious of your thoughts and behaviors.

Some practical questions to ask yourself are:

  • "What causes burnout?"
  • "How do I know if I am burning out?"
  • "What can I do to prevent burnout?"

Common Causes of Burnout 


A perfectionist continually focuses on what needs to be improved, rather than what has been accomplished. When this becomes our focus, we may never feel that we have succeeded at anything. 

Never-ending tasks: 

Never-ending tasks describe work that appears to lack both a beginning and end. This can lead us to feel as if we have no closure, and therefore have not completed anything. 

Work overload: 

Work overload is when we have more work to do than we can complete in a given amount of time. When we operate this way, we set ourselves up for failure. 

Impossible tasks: 

Impossible tasks suggest that we are physically unable to do something we may feel we should be able to do. If we believe that we should be able to do something that we cannot do, we automatically feel like we have failed. It is a no-win situation. 

Multiple roles: 

Many of us play a number of important roles in our lives, such as wife/husband, mother/father, caregiver, and breadwinner. It is easy to feel overwhelmed when we are trying to play multiple roles in our lives. 


Self-sacrifice occurs when we agree to take on certain tasks despite our true desire not to complete them. When we continually agree to things that we would rather not do, we inevitably become resentful. 

Unspoken feelings: 

Any emotion that is unexpressed creates "blocks" in our ability to complete tasks and to function in relationships. If we do not speak about how we are truly feeling in a situation, those emotions surface in other, unproductive ways such as being chronically late, frequently forgetting things, or reacting in ways that are inappropriate to the situation. 

Common Symptoms of Burnout 

It is important to remember that we are not alone in our experiences with burnout. At some point in time, it is likely that most of us will experience one or more of the following symptoms: 

"Negative" emotions: 

"Negative" emotions are the feelings that are often the least comfortable to feel. One symptom of burnout is consistent "negative" feelings such as anger, anxiety, dissatisfaction and guilt. 

Interpersonal problems: 

We might experience conflict with others in the form of emotional outbursts, overreacting, hostility and withdrawal. 

Health Problems: 

Some common health problems associated with burnout are frequent insomnia, fatigue, headaches, backaches, lethargy and high blood pressure. 

Poor performance: 

We may become less productive due to boredom, lack of enthusiasm, feelings of fear or an inability to concentrate. 

Substance abuse: 

Another symptom of burnout is a marked increase in the consumption of alcohol and/or other drugs, cigarette smoking, caffeine and food. 


You might be inclined to work more hours due to feelings of inadequacy, believing that the more you work, the better you will feel.


Depression is the suppression of emotions. We may be depressed if we notice an overall feeling of hopelessness and meaninglessness. 

Loss of self-esteem: 

Simply stated, the loss of self-esteem equals a decrease in self-confidence. 

Solutions in Dealing with Burnout 

Once we become more aware of why we experience burnout, and the various ways burnout manifests itself, we can begin to focus on ways to guard against it. It is time to develop a plan of action! 

Take care of yourself: 

  • Regularly feed your body nutritious foods 

  • Get sufficient rest 

  • Exercise routinely 

  • Pay attention to your body's signals of stress 

Practice stress-reducing strategies: 

  • Breathing exercises 

  • Yoga 

  • Progressive relaxation techniques 

  • Massage 

  • Meditation 

  • Tai chi 

Develop a strong support system: 

  • Surround yourself with friends/family by whom you feel supported. 

  • Attend a support group where you can share your concerns & feelings. 

  • Create a support/discussion group at work where you can share your concerns, while being willing to talk about your part in the problem and the solution. 

  • Utilize your company's Employee Assistance Program (EAP) to receive support/counseling or referrals for services that can assist you. 

  • See a counselor or therapist if you are in need of more extensive mental health support. 

Create a fulfilling life: 

  • Make conscious decisions about how you want to spend your time. 

  • Say "yes" to what you want to say "yes" to, and say "no" to what you want to say "no" to. 

  • Acknowledge your priorities and actively build your life around them. 

The key to avoiding burnout is to continually seek balance in your life. That can be especially hard for caregivers to do. But the more informed you are about your own issues with burnout, the more you’ll be able to take care of yourself.

Consequently, the better job you do of taking care of your own needs, the more you can be physically, mentally and emotionally available to those around you, especially to the person living with ALS you’re caring for.

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