Resources for Caregivers

Being a caregiver for someone living with ALS isn’t easy. Often, you're so busy supporting your loved one that your own physical or mental health takes second priority. It’s important you get the support and assistance you need so you can care for your loved one to the best of your abilities. Below are some resources you might find helpful.

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Support Groups

Support Groups

Our in-person and virtual ALS support groups address the unique challenges the disease presents, following best practices and joining people together who are dealing with similar difficult circumstances.

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ALS Community Education

Caregiver Education Course

People living with ALS require specialized caregiving support to address the complex, ever-changing nature of the disease. This FREE online course provides Strategies for care and resources to guide care decisions.

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Educational Resources

From fact sheets, publications and videos, to webinars, book recommendations, and in-depth resource guides, we’re committed to providing you with quick, easy access to a variety of FREE resources related to ALS.

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webinars

Living with ALS Webinars

Join us for monthly webinars designed specifically for the ALS community. From the latest ALS research opportunities to resources for delivering care to tips for traveling and navigating life with the disease, we’re taking on the topics that are important for people living with ALS and their caregivers. 

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ALS Care Connection

ALS Care Connection is a private online calendar that can be used to support the entire family by organizing volunteers who want to help take care of some of those tasks families describe as "falling through the cracks.”

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youth resources

Youth Education and Support

ALS impacts EVERYONE in the family, regardless of age. These resources are available to help support young people impacted by ALS.

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Care Matters E-Newsletter

Stay up to date by subscribing to our quarterly e-newsletter, Care Matters. You’ll receive the latest information about ALS care, disease management and resources to help people navigate the ALS journey.

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Creative Pursuits Program

A program designed specifically for individuals living with ALS and their caregivers, offering a supportive and inclusive environment where participants can explore various creative outlets and expressions.

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Clinician and patient

ALS Certified Clinics

We collaborate with some of the best ALS physicians and clinics across the US to ensure people living with ALS have access to specialized multidisciplinary care regardless of where they live.

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