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Ride to Defeat ALS 2021 Collage

Ride to Defeat ALS - Sunday, September 19, 2021

Longfellow Health Club, Wayland, MA

**Together you raised $226,000 which is 90% of our $250,000 goal!**

Our 2021 Ride to Defeat ALS was a perfect fall day! Thank you to all of our riders, sponsors, volunteers, and staff who helped to make this year's ride a huge success! There's still time to support this year's Ride - click on the button below to donate today!

Donate to the Massachusetts Ride to Defeat ALS

Congratulations to Our Top Fundraising Teams:

Spirit Ride: $47,500
AppleFriends4AALS: $36,500
Team Hope: $30,500

Congratulations to Our Top Fundraising Individuals:

Dolly McIlvaine: $16,185
Phillip Adams: $13,500
Leif Larsen: $12,100

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Ride to Defeat ALS Sponsor Logos Oct 2021
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Worcester Walk to Defeat ALS 2021 Recap Oct

Worcester Walk to Defeat ALS - Sunday, September 26, 2021

Polar Park, Worcester, MA

**Together you raised $87,000 which is 87% of our $100,000 goal!**

We are so thankful to everyone who made this year's Worcester Walk to Defeat ALS a booming success! We had an impressive 38 registered teams that included 204 participants - what a turnout! Thank you to Polar Park for hosting us at their beautiful new stadium - we can't wait to walk the field again next year. There's still time to support this year's walk - click on the button below to donate now.

Donate to the Worcester Walk to Defeat ALS

Congratulations to Our Top Fundraising Teams:

Mommagranate: $8,330
Jillyfish: $5,640
Sandy's Squad: $4,725

Congratulations to Our Top Fundraising Individuals:

John LeBlanc: $4,210
Amanda DeFreest: $3,885
Vanessa Parks: $2,425

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Worcester Walk to Defeat ALS Sponsor Logos Oct 2021

 

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Boston Walk to Defeat ALS 2021 Collage Recap

Boston Walk to Defeat ALS - Sunday, October 3, 2021

Carson Beach, Boston, MA

**Together you raised $170,000 which is 37% of our $450,000 goal!**

Thank you to everyone who joined us at our first ever Halloween themed Boston Walk to Defeat ALS! We had a great day and loved seeing everyone's costumes!

Weren't able to join us but still want to support our mission? Click on the button below to make a donation today that helps us continue our critical mission of serving families affected by ALS throughout the Commonwealth.

Donate to the Boston Walk to Defeat ALS

Congratulations to Our Top Fundraising Teams:

The A Team: $18,826
Reservation Golf Club (In Honor of Bob Wunschel): $14,374
Chip Fanelli Fan Club: $10,196

Congratulations to Our Top Fundraising Individuals:

Pat Wunschel: $14,374
Tom Garfield: $7,350
Sean McSweeney: $5,902

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Boston Walk to Defeat ALS Sponsor Logos September 2021
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Join us for our First Ever Artisan Alley at the Western MA Walk to Defeat ALS 2021

Western Mass Walk to Defeat ALS -  Sunday, October 10, 2021

Look Memorial Park, Florence, MA

**You've raised $44,000 which is 44% of our $100,000 goal!**

We have missed seeing you all so much over the past two years and cannot wait to Walk to Defeat ALS IN PERSON at Look Park on October 10th! To celebrate coming back together, we're introducing our first ever Artisan Alley. This spin on a local farmer's market will bring together Western MA’s premiere local vendors offering delicious food and drink. 

Join us in welcoming these local vendors who will be in attendance: 

Artifact Cider Project
Progression Brewing
My Main Squeeze
Nancy's Chocolate & More
Bryson's Maple Syrup
Knitted Insanity
Happy Nest Creations
How Charming
Yard Garb
Distinctive Works
Black Cats Pottery
Color Street
Shiny Things
Neomi's Aromatherapy
Kash Dog Bakery
Justina's Acrylic Art
Crafts & Things by Jade
Endless Energy
Mobile Manicures
Karin's Kreations
Erica's Soaps
Moon Frog Arts
 

REGISTER FOR THE WESTERN MASS WALK TO DEFEAT ALS

Congratulations to Our Top Fundraising Teams:

Casey's Cruisers: $10,275
Team Gottlieb: $7,253
Team Lenny: $5,120

Congratulations to Our Top Fundraising Individuals:

Tara Gottlieb: $6,748
Amanda Shumway: $5,470
Virginia Wilson: $2,645

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Western MA Walk to Defeat ALS Sponsor Logos August 2021
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Join us for our First Ever Halloween Themed North Shore Walk to Defeat ALS 2021

North Shore Walk to Defeat ALS - Sunday, October 17, 2021

Endicott College, Beverly, MA

**You've raised $42,155 which is 30.1% of our $140,000 goal!**

REGISTER FOR THE NORTH SHORE WALK TO DEFEAT ALS

Congratulations to Our Top Fundraising Teams:

Paige walkers: $7,200
Phil's Fools: $5,230
Yiayia Dukes: $3,300

Congratulations to Our Top Fundraising Individuals:

Leslie Pearlman: $7,200
Mary Anderson: $3,545
Sophia Stamos: $3,300

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North Shore Walk to Defeat ALS Sponsor Logos Oct 2021
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Who Do You Walk For? Walk to Defeat ALS 2021

Who do YOU walk for when you Walk to Defeat ALS?

We want to hear YOUR story!

We all have our reasons for Walking to Defeat ALS - and we want to hear yours! Send us a picture or two with a few sentences about why you or your team participates in the Massachusetts Walk to Defeat ALS. We want to share your story with our Massachusetts ALS community! Featured participants and teams will be showcased on the Chapter's social media with a direct link to their fundraising page! 

Submit Your Story & Photos Here

Make sure you're following us and keep an eye on our social media for updates on all our events and MORE throughout the year! 

Facebook Instagram Twitter 

YouTube LINKEDIN

Is your company interested in getting involved with our chapter or events?

Contact Ashley Carrier

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ALS Virtual Symposium Save the Date 2021

Save the Date: December 14, 2021

We're excited to once again offer our Virtual ALS Symposium this year! Mark your calendars for December 14th and join us to learn more about research updates, advocacy efforts in research and expanded access, and more! Our special guest lineup includes:

Dr. James Berry from The Healey Center at MGH presenting on Research

Dr. Jinsy Andrews from Columbia presenting on Advocacy & Expanded Access to ALS drugs

Dr. Katie Nicholson from The Healey Center at MGH presenting on Genetics & Counseling 

Dr. Courtney McIlduff from Beth Israel ALS Clinic presenting on the Importance of Multidisciplinary Clinics

And more!

Please contact [email protected] with any questions and for more information.

Click Here to Register

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Dr. Heidi Tarr Henson Roles Redefined Banner Image Oct 2021

Roles Redefined: ALS as Advocate and Teacher with Guest Blogger Dr. Heidi Tarr Henson

Dr. Heidi Tarr Henson, a Massachusetts woman recently diagnosed with ALS, reflects on on in-the-moment advocacy, teachable moments and the power of setting boundaries with ourselves and others. We invite you to read this impeccably poignant piece by clicking on the button below.

Read Dr. Heidi Tarr Henson's Blog Here

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Stress & ALS Box Logo

Introducing Beyond My Battle: A 3 Part Virtual Workshop

Save the Date for our November Virtual Workshop, Beyond My Battle. This three part series is designed for any caregiver looking to manage stress, cope with difficult emotions, and support their loved ones with ALS. 

Workshop 1 (November 1): Understanding Stress
Workshop 2 (November 8): Mindful Communication
Workshop 3 (November 15): Everyday Mindfulness
*Group Discussion (November 15)

Workshops 1-3 will be recorded and distributed to all registrants.

*Please note that a 4th session is offered that will gather immediately following the 3rd workshop (November 15 at 6:45 pm ET). This live session is a group discussion and will be unrecorded and not distributed. A link to join this discussion will be provided at the end of the 3rd workshop.

This free series is provided by Beyond My Battle for the ALS Association Chapters of Upstate New York, Northeast New England, Connecticut, Rhode Island, and Massachusetts. It is sponsored by Mitsubishi Tanabe Pharma America.

Register for the Workshop Here

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Two New Community Groups for October 2021

NEW This Month: Natick & Cape Cod In Person/Virtual Hybrid Community Groups

Check out the links below in our list of October Community Groups to see our brand new in person/virtual hybrid community groups, now available both in Natick at the Morse Institute Library and on Cape Cod at the Barnstable Adult Community Center.

NORD MedicAlert® Assistance Program Flyer Image 2021

NORD's MedicAlert® Assistance Program

NORD’s MedicAlert Assistance Program provides MedicAlert products and services to eligible individuals in the rare disease community. If someone with a rare disease can’t speak for themselves in an emergency, MedicAlert can be their voice in providing important and potentially life-saving information. The program provides eligible individuals with a MedicAlert product and 3-years of membership.

Learn More Here

Man Living with ALS Being Fitted with Breathing Device

Day in My Life Project: An Inside Look at ALS

Are you or someone you love currently living with ALS? We need your help!

So often, people who have never been exposed to ALS have no knowledge about what the day to day looks like for a family affected by ALS. Here’s where you come in!

We’d love you to take videos (and photos if you wish!) of various activities you engage in daily. This could be:

  • Using DME/LME in or outside of your home
  • Living with a PEG tube
  • AAC communication with caregivers (hired or living in your household)
  • Meal time routines with adaptive utensils
  • Trach and vent use (maybe someone who is on 24/7)
  • Power Wheelchair use inside and outside the home – to include a ramp?
  • Transfers from bed (with hoyer lift) to power wheel chair
  • Anything else you think you want to share!
  • You can also choose to include a video of telling your (or your loved one’s) diagnosis story and/or how The ALS Association Massachusetts Chapter helps your family on your ALS journey.

We hope through this program we can help educate those who do not have intimate knowledge of what living with ALS is like. This series will also help families just starting their ALS journey feel like they’re not alone and that there are others who understand what they’re going through every day.

Contact Our Communications & Marketing Manager to Participate

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Augmentative Communication Tablet Devices with Various Accessories

Communication Device Donations Needed in Massachusetts!

We need your help! We rely on donations of dedicated speech generating devices (SGDs), with and without eye tracking cameras for our Augmentative and Alternative Communication (AAC) and Assistive Technology (AT) Loan Program. We also rely on donations of SGD mounts (wheelchair and rolling floor mounts). Our current eyegaze device inventory in our AAC/AT loan program is critically low. If you obtained a SGD through insurance and it is no longer being used, please consider donating it to our chapter, so we can help another person with ALS in need.

The Impact of COVID-19 on AAC Services: Access to AAC evaluations with qualified speech-language pathologists has been challenging during the COVID pandemic and Medicare does not cover these evaluations when they are delivered via telehealth. Therefore, it can be difficult for people with ALS to obtain necessary SGDs through their insurance. For people with ALS living in long term care facilities with severely restricted visitation due to COVID-19, a loaned SGD may serve as their only safe connection with their family and friends. Your tax-deductible donation can make a significant impact for a person with ALS!

We are seeking SGDs that are preferably less than 4 years old (Please email Jen at [email protected] with questions about donating older devices).

  • Tobii Dynavox I-12 or I-15, preferably 2017 or newer, or I-13/I-16
  • PRC Accent with NuEye or Look eyegaze
  • Eye Gaze Inc. (Formerly LC Technologies) EyeGaze Edge
  • Forbes AAC (Formerly FRS) Winslate with Enable Eyes eyegaze camera
  • Talk To Me Technologies Zuvo with eyespeak camera
  • NeuroNode Trilogy

We are also in need of wheelchair or rolling floor mounts for SGDs. If you would like to donate a wheelchair mount, please let us know the wheelchair year, make and model.

  • ConnectIT mounts
  • Rehadapt mounts – Classic or Pentalock
  • Daessy mounts
Interested in donating?

Please contact Jennifer Chapin, Speech Pathologist and AAC Specialist,

at (781) 234-5307 or via email [email protected].

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