CEO SOAK Was a Great Success!
Care Services Monthly
1) New Patient Packet
This month we would like to highlight the “Please Read I Have ALS” card. This is a card you can give to a “First Responder” to provide critical information to ensure they are aware of what can help when they are assisting you. If you do not have this card, you can request one from your Care Services Coordinator. Information provided by this card is:
- Description of breathing requirements
- Description of how medications are taken
- Explanation that you are able to understand what the first responder is saying and how you communicate
- You are able to identify areas where you have weakness
- Your caregiver contact information
2) Emotional/Spiritual Information
Book Suggestions: A Hero’s Tale by Ethan D. Bryan. A good summer read about raising money for a beloved football coach in Springfield, Missouri who was diagnosed with ALS.
4) Durable Medical Equipment
The ALS Loan Closet is looking for volunteers!
If you are looking for a way to help and have a few extra hours to share, consider volunteering for the Loan Closet Volunteer program. This new program consists of helping deliver and pick up smaller pieces of durable medical equipment. If you are interested, please contact Caira Turner, at: [email protected]
And if you know of someone with ALS in need of durable medical equipment like powered wheelchairs, electric hospital beds, Hoyer lifts, or the like, contact your local Care Service Coordinator with requests. Items can be borrowed at no cost on a short-term or long-term basis.
2022 Assistive Technology Week was August 8-12th
If you missed any of the presentations you can find the recordings on our YOUTube Channel. Assistive Technology Week 2022 Playlist: https://youtube.com/playlist?list=PLDEZCVI9RF6EL9E4spaDW2dCVPQwbJqaD
If you have additional questions, please contact Regan Barton at [email protected]────────────────────────────────────────────────
ALS Support Groups
Dealing with ALS is physically, emotionally and financially devastating. ALS Support Groups provide a caring, supportive, and open environment for people to gather, connect, and talk with one another. These groups are open to people living with ALS, their families, caregivers and friends. They provide everyone with opportunities to establish a network of valuable resources and sustained support. Our Chapter offers many support groups for both patients and caregivers. Click here for a complete list. Each meeting and will have speakers on relevant topics combined with time for attendees to share information and provide feedback to one another.
The ALS Association DC/MD/VA Chapter Events
Our Chapter and third-party hosted events provide opportunities to #ChallengeALS: from raising awareness of ALS, to fundraising for our Chapter to support our services, these opportunities allow us to gather, connect, and fight ALS together.
Register TODAY for The Walk to Defeat ALS Near you!
9/17: Baltimore Walk to Defeat ALS http://web.alsa.org/BALTIMORE
9/24: Roanoke Walk to Defeat ALS http://web.alsa.org/RoanokeALSWalk
10/8: Western Maryland Walk to Defeat ALS http://web.alsa.org/WesternMaryland
10/9: Tidewater Walk to Defeat ALS http://web.alsa.org/TidewaterALSWalk
10/15: DC Walk to Defeat ALS http://web.alsa.org/DCALS
10/29: Richmond Walk to Defeat ALS http://web.alsa.org/RichmondALSWalk
Join us for Dine to Defeat happening Thursday October 20th at the Bethesda North Marriott. We will be honoring four ALS Heroes who have made a positive impact on the lives of those living with ALS. Purchase your tickets to Dine Today!
CEO SOAK was A Great Success!
Our inaugural DC CEO Soak was held this month at Coastal Flats in Fairfax, VA. We had close to 30 attendees and 10 “Soakees” who took a bucket to help raise awareness and funds for The ALS Association. Special thanks to Maxim Health, our National CEO Soak partner, Booz Allen Hamilton, Eye Gaze and Merrill Lynch who each had teams. Thank you to Great American Restaurants for hosting our event. David Dubois, veteran and person living with ALS was our top fundraiser, raising over $17,000. We are more than half way to our goal of $40,000. There’s still time to support this wonderful event by donating here. We look forward to growing this event next year and encourage anyone interested to connect with us!
Donate Equipment to The ALS Association DC/MD/VA Chapter!
The ALS Association DC/MD/VA Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. The Program offers temporary loaner equipment, including speech generating devices, to area residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval.
For equipment donations, please contact us at 301-978-9855.
We will provide an acknowledgment letter to each donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, and NuMotion.
Numotion graciously donates their time and services to help us fulfill our Equipment Loan Program, providing temporary loaner equipment to area residents in need with a verified diagnosis of ALS.
Fun Ways to Fight ALS
There are several ways to fight ALS through FUNdraising efforts including (but not limited to): shopping, playing games, live streaming, exercising, and SO MUCH MORE.
Your gift will help The ALS Association DC/MD/VA Chapter support research to find a cure for ALS and provide much-needed services to people living with ALS and their families. By making your gift today, you will help sustain hope in thousands of people affected by ALS. To make an online donation, please click on the button below.
Connect With Us On Social Media
To get the latest updates regarding what is happening in Florida to treat, care for, and fight ALS, make sure to follow us on all of our social media channels.