The ALS Association is committed to making ALS a livable disease until a cure is found. Providing care and support services is just one way we are working to make that a reality.
This issue we are focusing on the many facets of wellness and the ALS community, shining a spotlight on the act of practicing healthy habits to attain better physical and mental health outcomes.
While research supported by The ALS Association has shown youth caregivers in our community develop a sense of pride from being able to help a parent or a loved one, caregiving can also be a tremendous source of stress in their everyday lives.
Practicing wellness and self-care is key to improving your ability to live a longer, healthier life. Making a concerted effort to keep your mind healthy is just as important as keeping your body healthy, particularly for people living with ALS and their caregivers.
For ALS caregivers, there are likely lists upon lists. Regrettably, we know that far too often the last thing on those lists is themselves. So, in the spirit of keeping a list, here’s a list of ALS caregiver “to dos” for their own self-care and wellness.
While ALS support groups address the unique challenges the disease presents, they follow best practices, joining people together who are dealing with similar difficult circumstances.
Joining forces with friends and former colleagues at Esri, the geographic information system (GIS) company where he had worked, Pat Dolan set out to develop an ALS Clinic Locator, a resource that would enable the ALS community to locate ALS multidisciplinary clinics via city or ZIP code.
To access The ALS Association ALS Clinic Locator, visit our website HERE.
Your story provides crucial information for the Registry. Participation helps researchers gain a better understanding of the risk factors for ALS and could help offer a better future for persons living with ALS.
Register here. After registering, you will receive a confirmation email containing information about joining the webinar.
To view past educational ALS webinars available in our archive, visit our website HERE.
To continue to follow stories about people living with ALS in the community and learn more about the disease, subscribe to receive our weekly blogs in your inbox HERE or follow us at als.org/blog.
The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care.
Our nationwide network of chapters and partners deliver a robust portfolio of care and support programs designed to enhance quality of life and support families impacted by ALS.
Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.
We have assembled multiple resources, including publications and videos produced by The Association, and other related books, fact sheets and resource guides pertaining to ALS and ALS care.
For more information, visit our website at
als.org.
Stay up to date with the latest ALS research news by signing up for our monthly e-newsletter, Research Matters.
We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communication@alsa-national.org.